rettsyndrome.in

Indian RETT Syndrome Foundation

Taking Lead for the CARE. Of the Silent Angels. Rett syndrome is a unique neurodevelopmental disorder that is first noticed in infancy and primarily affects girls, but can be rarely seen in boys. Rett syndrome has been most often misdiagnosed as autism, cerebral palsy, or global developmental delay. Rett syndrome is found in all ethnic and racial groups and occurs worldwide in 1 of every 10,000 to 23,000 female births. Indian RETT Syndrome Foundation 2010.

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Indian RETT Syndrome Foundation | rettsyndrome.in Reviews

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Taking Lead for the CARE. Of the Silent Angels. Rett syndrome is a unique neurodevelopmental disorder that is first noticed in infancy and primarily affects girls, but can be rarely seen in boys. Rett syndrome has been most often misdiagnosed as autism, cerebral palsy, or global developmental delay. Rett syndrome is found in all ethnic and racial groups and occurs worldwide in 1 of every 10,000 to 23,000 female births. Indian RETT Syndrome Foundation 2010.

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Indian RETT Syndrome Foundation | rettsyndrome.in Reviews

https://rettsyndrome.in

Taking Lead for the CARE. Of the Silent Angels. Rett syndrome is a unique neurodevelopmental disorder that is first noticed in infancy and primarily affects girls, but can be rarely seen in boys. Rett syndrome has been most often misdiagnosed as autism, cerebral palsy, or global developmental delay. Rett syndrome is found in all ethnic and racial groups and occurs worldwide in 1 of every 10,000 to 23,000 female births. Indian RETT Syndrome Foundation 2010.

INTERNAL PAGES

rettsyndrome.in

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Indian RETT Syndrome Foundation

http://www.rettsyndrome.in/helpInfoLinks.html

International Rett syndrome foundation. Rett Syndrome Research Trust. Http:/ www.rsrt.org. Rehabilitation council of India. Http:/ rehabcouncil.nic.in/home.htm. National Policy for Disable person. Http:/ www.disabilityindia.org/nationalpolicyfordisable.cfm. Http:/ ghr.nlm.nih.gov/condition=rettsyndrome. Http:/ en.wikipedia.org/wiki/Rett syndrome. National institute of neurological disorders and stroke. Http:/ www.ninds.nih.gov/disorders/rett/detail rett.htm. Worldwide Clinical Trials on Rett syndrome.

2

Indian RETT Syndrome Foundation

http://www.rettsyndrome.in/resource.html

We are very grateful to the International Rett syndrome Foundation , the first charitable parent organization of Rett syndrome and who has always given their help and support to help our Indian Rett families and they have been our strength which has supported us to form this organization. Warm and special thanks to International Rett syndrome foundation. And Rett Syndrome Research Trust. Visit the homepage of these organisations to read more about Rett syndrome. International Rett syndrome foundation.

3

Indian RETT Syndrome Foundation

http://www.rettsyndrome.in/forFamilies.html

Information Books for Parents:. Little Angels (English) ( Download. Nanhe Farishtey (Hindi) ( Download. IRSF Brochure: ( Download. Stories by families: To be updated. Please share your story of your journey with Rett syndrome and post us at info@rettsyndrome.in or info.rett@yahoo.com. Your story can be source of support and motivation for other families). Indian RETT Syndrome Foundation 2010.

4

Indian RETT Syndrome Foundation

http://www.rettsyndrome.in/gallery.html

First Annual Rett syndrome Awareness Meet. Second Annual Rett syndrome Awareness Meet. Third Annual Rett syndrome Awareness Meet. Fourth Annual Rett syndrome Awareness Meet. Fifth Annual Rett syndrome Awareness Meet. Indian RETT Syndrome Foundation 2010.

5

Indian RETT Syndrome Foundation

http://www.rettsyndrome.in/newsEvents.html

Rett Syndrome Awareness 'Family Get Together'. Indian Rett Syndrome Foundation (IRSF) invites and welcomes all Rett syndrome families of New Delhi along with their relative, friends and caretakers of Rett Angels to join us for family get together on 03 August, 2013 at McDonald, Rajouri Garden, New Delhi. For more details,. Download the brochure ( Download. Highlight of the day: Ronald McDonald, Chief happiness officer of McDonald will come to greet all the Rett Angels and their Sibs. We wish to keep on d...

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aussierett.org.au

Useful Links, Rett Syndrome, Telethon Institute for Child Health Research

http://www.aussierett.org.au/resources/useful-links

AussieRett: Australian Rett Syndrome Study. InterRett: International Rett Syndrome Study. What is Rett Syndrome? Family Association and ANZACRett. Guidelines, Reports and Books. ARACY - Australian Research Alliance for Children and Youth. Children with disability Australia. Worldwide Rett Syndrome Associations. Austrian Rett Syndrome Association. Argentina - Rett Argentina. Belgium - Belgische Rett Syndroom Vereniging. Canada - Ontario Rett Syndrome Association Canada. Italy - Associazione Italiana Rett.

ordindia.org

Patient Advocacy Groups | ORD India

http://ordindia.org/patients/patient-advocacy-groups

Helpline : 91 8892 555 000. Email : contactus@ordindia.org. History, Vision and Mission. Donate for a Cause. Physicians & Specialists. Genetic Counselling Centres in India. Initiatives – India. Initiatives – Globally. AKU Society, ChennaiDisease : Alkptunoria. Amrutavarshini, KochinDisease: Osteogenesis ImperfectaWebsite: http:/ amrithavarshini.org/. Association For Patients With Rare Eye Diseases, BangaloreDisease: Rare Eye Diseases. CAH Indian Chapter, DelhiDiseases: Congenital Adrenal Hyperplasia (CAH).

racefor7.com

Supporting PAGs | Race For 7

http://racefor7.com/supporting-pags

Bengaluru, India OLD. Washington DC, USA. 8220;Awareness is key to. 8220;We get care even if we are rare”. 8220;I Won’t Give In Without A Fight”. Indian Patients Society for Primary Immunodeficiency. To learn more about rare diseases in India, visit http:/ ordindia.org. Highslide for Wordpress Plugin.

rettsyndromeindia.blogspot.com

Indian Rett Syndrome Foundation: 2012/09

http://rettsyndromeindia.blogspot.com/2012_09_01_archive.html

Indian Rett Syndrome Foundation. This Blog of Indian Rett Syndrome Foundation (IRSF) is dedicated to all Rett Angels and their families. This blog is to raise global awareness of Rett syndrome. Please join and share this blog with everyone. Wednesday, September 12, 2012. 5TH ANNUAL RETT SYNDROME AWARENESS MEETING AND SYMPOSIUM (NEW DELHI, INDIA). The month of October is marked as “ Rett Syndrome Awareness Month. This year IRSF is organizing and sponsoring its 5th annual Awareness meeting and symposium.

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Ogolnopolskie Stowarzyszenie Pomocy Osobom z Zespolem Retta

rettsyndrome-ve.blogspot.com

Sindrome de Rett en Venezuela

Sindrome de Rett en Venezuela. Un esfuerzo para compartir información sobre el Síndrome de Rett y sumar esfuerzos para ayudar a las familias que tengan algún miembro con dicho síndrome, en Venezuela. Contacto fundarettve@gmail.com. 191;Qué es el Síndrome de Rett? El Síndrome de Rett es un desorden neurológico severo causado. Por la mutación de un gen llamado MECP2 que se halla localizado en el cromosoma X. Cuidar hoy, Curar mañana. Jueves, 25 de noviembre de 2010. Datos sobre el Sindrome de Rett. Manual ...

rettsyndrome.be

Belgische Rett Syndroom Vereniging VZW

De Belgische Rett Syndroom Vereniging. Waar staat ze voor? U ziet het hier in een oogopslag. Klik links en rechts om alle details te ontdekken. Een klik op het logo brengt je terug naar deze beginpagina. Lil 26, 2450 Meerhout – RPR Turnhout 0 435 817 931 – brsv@rettsyndrome.be. Ndash; Rekeningnummer BE02 0682 0608 7540. Belgische Rett Syndroom Vereniging vzw – het gebruik van de foto′s voor andere doeleinden is niet toegestaan. Of hier een samenvatting. In Rett Gazet 42. Of in het Engels. Vanaf 40 euro d...

rettsyndrome.eu

Rett Syndrome Europe | RSE

Rett Syndrome Database Network. Please help maintaining the Rett Syndrome Database Network. Dear friends, As President of Rett Syndrome Europe, I am writing to you today to ask for your Association’s support for the European Rett database located in Italy: the Rett Syndrome Database Network (RSDN). The simple fact is that vital research on Rett syndrome or clinical trials cannot be easily achieved without collecting and analysing […]. Czech Republic Association family event. In Paris and Lyon, June 2015 ...

rettsyndrome.ie

Rett Syndrome Association of IrelandThe Rett Syndrome Association of Ireland | Just another WordPress site

The Stages of Rett Syndrome. Breathing Issues in Rett. Living With Rett Syndrome. Speech and Language Therapy. Past Editions of Newsletters. Terms and Conditions of Website Use. Donate to The Rett Syndrome Association of Ireland. Rett Syndrome Association of. The Rett Syndrome Association of Ireland. Is an association of. Of people affected with Rett Syndrome and other related disorders. Rett Syndrome is a rare. Almost exclusively. It often features. Who have received a. We aim to raise awareness.

rettsyndrome.in

Indian RETT Syndrome Foundation

Taking Lead for the CARE. Of the Silent Angels. Rett syndrome is a unique neurodevelopmental disorder that is first noticed in infancy and primarily affects girls, but can be rarely seen in boys. Rett syndrome has been most often misdiagnosed as autism, cerebral palsy, or global developmental delay. Rett syndrome is found in all ethnic and racial groups and occurs worldwide in 1 of every 10,000 to 23,000 female births. Indian RETT Syndrome Foundation 2010.

rettsyndrome.mb.ca

Manitoba Rett Syndrome Association - Home Page

Rett Syndrome (RS) is a neurological disorder seen almost exclusively in females and found in a variety of racial and ethnic backgrounds. The cause of Rett Syndrome has been traced to a defective gene on the X chromosome called "MeCP2". Reversal of Neurological Defects in a Mouse Model of Rett Syndrome. To read the full paper, click here. The International Rett Syndrome Association. Offers comprehensive information and the latest news in RS research. The Rett Syndrome Research Foundation.

rettsyndrome.org

Home - Rettsyndrome.org

Our Role and Impact. Our Role and Impact. Our Leadership and Staff. RETTNET Terms and Conditions. What is Rett Syndrome? About the Diagnosis and Genetic Testing. Frequently Asked Questions (FAQ's). The Rett Syndrome PSA [Video]. The History of Rett Syndrome. Open Call: Research Opportunities. Clinical Research and Trials. Laboratory Tools and Other Resources. Tissue and Cell Collections. Life with Rett syndrome. School and Day Programs. Planning for the Future. Create a Personal Page. More Ways to Help.

rettsyndrome.org.es

Información del Síndrome de Rett en Español

Lo sentimos, la web ha sido cerrada. En 1998, ante la falta de informacion a cerca del Síndrome de Rett en Español, un grupo de familiares decidimos poner en marcha un proyecto de divulgacion de informacion a través de Internet. 16 años más tarde, existen múltiples fuentes de información en Español y potentes herramientas de traducción que pueden ayudar a la comprension de textos en inglés. Http:/ www.rettsyndrome.org. La familia de Patricia Mendoza.

rettsyndrome.org.nz

Rett New Zealand | Welcome

Welcome to the Website of Rett New Zealand. This website provides information and support for families affected by Rett syndrome. You will find here information about Rett New Zealand, a brief description of Rett syndrome, links to current research and links to other useful sites. We have also added a page for personal stories and other contributions for families to share their experiences. Join us at our Facebook Group. And share your thoughts, advice and worries. Send us an e-mail. RSRT recently awarde...

rettsyndrome.org.tr

RETT SENDROMLU AİLELER DAYANIŞMA DERNEĞİ

AİLELER DAYANIŞMA DERNEĞİ. RS'e Genel Bakış. Rett Sendromu hastalığında tedavi umudu. Eylem Selby'nin çeviri katkılarıyla). Dayanışma Derneği. Rett Sendromu hastalığının Türkiye çapında tanınmasını sağlamak amacıyla kurulan derneğimiz, hastalık hakkında genetik araştırmaların takibini yapmak, nedenlerinin ortaya konulması, tedavisi ve önlenmesi konularında yapılan çalışmaları araştırara...Basında Rett Sendromu. Milliyet Gazetesi, 21 Nisan 2002 -. Yazının Tamamı. Sabah Gazetesi, Mart 2002 -. Yıld&#30...