nystagmusandcones.blogspot.com
Life in detail: Child Views
https://nystagmusandcones.blogspot.com/2013/12/child-views.html
Achromatopsia Blog - parenting a child with achromatopsia (nystagmus, cone dystrophy, colourblindness and low vision). Friday, 6 December 2013. I have to share this. It is an transcript of interview with Charlotte where she has been asked her opinion about school. I can just imagine this conversation unfolding and. Her answers are so adorable! What I feel about my class. I like it because it is higher and closer to Year 1.". I like them because they are fun and they play games with me.". I can do this .
nystagmusandcones.blogspot.com
Life in detail: White Cane Assessment
https://nystagmusandcones.blogspot.com/2014/09/white-cane-assessment.html
Achromatopsia Blog - parenting a child with achromatopsia (nystagmus, cone dystrophy, colourblindness and low vision). Wednesday, 17 September 2014. Charlotte has had an evaluation for a white cane. I set it up because I want her to have access to all the tools that she might need but I think I was also hoping that the verdict would be: "She's fine, she doesn't need a cane.". Not so, she does qualify. Will this make her less physically adventurous? What about riding a bike, or going for a run? But it was...
nystagmusandcones.blogspot.com
Life in detail: November 2013
https://nystagmusandcones.blogspot.com/2013_11_01_archive.html
Achromatopsia Blog - parenting a child with achromatopsia (nystagmus, cone dystrophy, colourblindness and low vision). Sunday, 10 November 2013. I hope all the achromats in England had a good time at Bonfire Night this week. We took Charlotte to her first firework display and it was so gratifying to watch her sweet little face lit up by the fireworks as she looked up and took in the display. Subscribe to: Posts (Atom). London, United Kingdom. View my complete profile. Have you ever done a Disney Cruise?
nystagmusandcones.blogspot.com
Life in detail: July 2013
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Achromatopsia Blog - parenting a child with achromatopsia (nystagmus, cone dystrophy, colourblindness and low vision). Monday, 1 July 2013. I got the darkest tinted goggles I could find for Charlotte. ( These ones. Location: London, UK. Subscribe to: Posts (Atom). London, United Kingdom. I am the mother of two lovely little girls. We spend our time making, doing, sharing (mostly) and having fun together. View my complete profile. Have you ever done a Disney Cruise? The Shifty Eyes Blog.
nystagmusandcones.blogspot.com
Life in detail: May 2013
https://nystagmusandcones.blogspot.com/2013_05_01_archive.html
Achromatopsia Blog - parenting a child with achromatopsia (nystagmus, cone dystrophy, colourblindness and low vision). Friday, 24 May 2013. Charlotte has a new teaching assistant assigned to her. She will be there 4 days a week which is what the statement funding will cover. It will be great to see how she makes progress in the classroom with a bit of extra support. On a practical level, I briefed the new teacher by giving her a copy of the incredibly helpful Teachers Guide to Helping a Student with Achr...
cyrusandcole.wordpress.com
December | 2012 | Cyrus & Cole
https://cyrusandcole.wordpress.com/2012/12
Adventure of two crazy boys. 3. Archive for December, 2012. Super proud of Cyrus got his Senior Yellow Belt! Dai dai = little brother. Gor gor = big brother. Blue sui sui = water. Blubbly sui sui = soda. Paw paw = grandma. Hugah = itch (that's just a word he made up when he was a baby). Tsa tsa = dirty. Cyrus’ Second Amerikick Competition. Enter your email address to subscribe to this blog and receive notifications of new posts by email. Join 33 other followers. Blog at WordPress.com.
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October | 2012 | Cyrus & Cole
https://cyrusandcole.wordpress.com/2012/10
Adventure of two crazy boys. 3. Archive for October, 2012. Just to let everyone know we’re safe. It feels like the longest week with everything that’s happened and it’s not even over yet. With all that’s going on, I hope these pictures will brighten your day. Friday at Amerikick’s Halloween Party. Dai dai = little brother. Gor gor = big brother. Blue sui sui = water. Blubbly sui sui = soda. Paw paw = grandma. Hugah = itch (that's just a word he made up when he was a baby). Tsa tsa = dirty.
nystagmusandcones.blogspot.com
Life in detail: December 2012
https://nystagmusandcones.blogspot.com/2012_12_01_archive.html
Achromatopsia Blog - parenting a child with achromatopsia (nystagmus, cone dystrophy, colourblindness and low vision). Friday, 7 December 2012. University College London have a page covering their genetic research for retinal diseases. They have updated for Achromatopsia CNGB3 and it looks like they are planning on moving forward with a clinical trial. I am not certain if this is the same one as Moorfields are doing. Subscribe to: Posts (Atom). London, United Kingdom. View my complete profile.
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April | 2012 | Cyrus & Cole
https://cyrusandcole.wordpress.com/2012/04
Adventure of two crazy boys. 3. Archive for April, 2012. March and April park days with Cyrus’ Class. A 5 minute walk to the park (around 3-4 blocks) takes a half hour with the kids… I didn’t know walking 14/17 kids would be such a challenge… LoL But it’s truly fun you get to spend time and talk to these little people clever things to say. Dai dai = little brother. Gor gor = big brother. Blue sui sui = water. Blubbly sui sui = soda. Paw paw = grandma. Tsa tsa = dirty. Join 33 other followers.
nystagmusandcones.blogspot.com
Life in detail: September 2014
https://nystagmusandcones.blogspot.com/2014_09_01_archive.html
Achromatopsia Blog - parenting a child with achromatopsia (nystagmus, cone dystrophy, colourblindness and low vision). Wednesday, 17 September 2014. Charlotte has had an evaluation for a white cane. I set it up because I want her to have access to all the tools that she might need but I think I was also hoping that the verdict would be: "She's fine, she doesn't need a cane.". Not so, she does qualify. Will this make her less physically adventurous? What about riding a bike, or going for a run? But it was...