scidstuff.blogspot.com
SCID Stuff: July 2007
http://scidstuff.blogspot.com/2007_07_01_archive.html
A place for everything SCID related. SCID is Severe Combined Immunodeficiency. It's often referred to as the Bubble Boy Syndrome. Wednesday, July 18, 2007. I've had to move this blog over to Wordpress because I've had so many problems posting to this site. Seems I only get a post to upload about one out of every 3 times I try. I've written support, but didn't get any useful help. So, I've moved the site. You can click on http:/ scidstuff.wordpress.com. To find newer entries. Subscribe to: Posts (Atom).
scidstuff.blogspot.com
SCID Stuff: November 2006
http://scidstuff.blogspot.com/2006_11_01_archive.html
A place for everything SCID related. SCID is Severe Combined Immunodeficiency. It's often referred to as the Bubble Boy Syndrome. Thursday, November 30, 2006. Death of 3-year-old spurs Ottawa school to hold auction to help pay medical bills. Death of 3-year-old spurs Ottawa school to hold auction to help pay medical bills. Thursday, November 30, 2006. Don’t cry, it’s just a joke. 8220;Anyone that’s seen pictures of Chloe or heard about her struggle . you couldn’t help but fall in love wit...The auction w...
scidstuff.blogspot.com
SCID Stuff: August 2006
http://scidstuff.blogspot.com/2006_08_01_archive.html
A place for everything SCID related. SCID is Severe Combined Immunodeficiency. It's often referred to as the Bubble Boy Syndrome. Wednesday, August 30, 2006. A new type of radiosensitive T–B–NK severe combined immunodeficiency. J Clin. Invest. 116:137-145 (2006). doi:10.1172/JCI26121. A new type of radiosensitive T–B–NK severe combined immunodeficiency caused by a LIG4 mutation. 1Department of Immunology and. 2Department of Cell Biology and Genetics, Erasmus Medical Center, Rotterdam, The Netherlands.
katlyn-adascid.blogspot.com
Katlyn's Struggle with ADA SCID: Day +219
http://katlyn-adascid.blogspot.com/2015/04/day-219.html
Katlyn's Struggle with ADA SCID. Thursday, April 9, 2015. View my complete profile. Gene therapy: Treating the bubble babies. Harrison's fight with ADA-SCID. Parker's Battle with ADA. There was an error in this gadget. Watermark template. Powered by Blogger.
katlyn-adascid.blogspot.com
Katlyn's Struggle with ADA SCID: November 2014
http://katlyn-adascid.blogspot.com/2014_11_01_archive.html
Katlyn's Struggle with ADA SCID. Thursday, November 20, 2014. I love her little smile so much. Despite a hard day, we have shared some good laughs. What has changed in the past couple of weeks? She had a pickle and half a juicebox. The next morning I was overjoyed to see her little smile and sense of humor back, I don't know for sure if that was what the problem was, but it seemed to work! Subscribe to: Posts (Atom). View my complete profile. Gene therapy: Treating the bubble babies.
katlyn-adascid.blogspot.com
Katlyn's Struggle with ADA SCID: May 2009
http://katlyn-adascid.blogspot.com/2009_05_01_archive.html
Katlyn's Struggle with ADA SCID. Tuesday, May 5, 2009. So as I mentioned in my last entry, Katlyn had her first surgery. The surgery was a success. According to two pathologist reports, the whole tumor is gone! So we have an appointment next week with Katlyn's doctors in Saint John to discuss what our next plan is. After that I imagine we'll book her next surgery. Subscribe to: Posts (Atom). Sorry I have neglected Katlyns blog for so l. View my complete profile. Gene therapy: Treating the bubble babies.
katlyn-adascid.blogspot.com
Katlyn's Struggle with ADA SCID: February 2015
http://katlyn-adascid.blogspot.com/2015_02_01_archive.html
Katlyn's Struggle with ADA SCID. Tuesday, February 17, 2015. Day 198 Happy Valentines everyone. We will be spending the day cuddling and being so grateful we have each other and this little bucket full of love. Are we ever blessed! She is doing well. Not much has changed. Just waiting for those tcells to come so Katlyn get out of isolation and back on with her life. We were lucky enough to be home over the past two weeks. We will be heading to Halifax this week for Katlyns ivig and bloodwork. Not...We ar...
katlyn-adascid.blogspot.com
Katlyn's Struggle with ADA SCID: April 2015
http://katlyn-adascid.blogspot.com/2015_04_01_archive.html
Katlyn's Struggle with ADA SCID. Thursday, April 9, 2015. Day 252 Finally things are starting to look up for us. Katlyn had her appointment at the IWK yesterday and by the time we left we felt on top of the world. For starters, Katlyn’s new medication working wonders! Subscribe to: Posts (Atom). View my complete profile. Gene therapy: Treating the bubble babies. Harrison's fight with ADA-SCID. Parker's Battle with ADA. There was an error in this gadget. Watermark template. Powered by Blogger.
katlyn-adascid.blogspot.com
Katlyn's Struggle with ADA SCID: December 2014
http://katlyn-adascid.blogspot.com/2014_12_01_archive.html
Katlyn's Struggle with ADA SCID. Tuesday, December 16, 2014. So that yucky stuff she didn't want to drink is gone out of her life, but it did work and dissolve the stones! Lastly, I finally convinced Katlyn to let me cut her hair. It looks so sweet. A fresh new beginning with a fresh new immune system. Day 130 Beautiful little tree we decorated today to bring soon Christmas spirit into Katlyns room. We are sooo blessed to have eachother through this. She is up to 22.5kg which is amazing! So this afternoo...
