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linzer, party of five

Saturday, August 9, 2014. Many hours of most days I am able to seem normal. Act normal. Even feel. Normal. There are the stolen moments during those days, when seeming, acting and feeling normal is simply not possible; moments which are generally contained to my alone time. Days like Quinn's first anniversary in heaven. It was the remaining 6 hours and 53 minutes of August 9th, 2013, and every succeeding day that now comprise 'the worst day(s) of my life'. An unbelievably well-attended wake. May 16th, wh...

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linzer, party of five | teamlinzer.com Reviews

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Saturday, August 9, 2014. Many hours of most days I am able to seem normal. Act normal. Even feel. Normal. There are the stolen moments during those days, when seeming, acting and feeling normal is simply not possible; moments which are generally contained to my alone time. Days like Quinn's first anniversary in heaven. It was the remaining 6 hours and 53 minutes of August 9th, 2013, and every succeeding day that now comprise 'the worst day(s) of my life'. An unbelievably well-attended wake. May 16th, wh...

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linzer, party of five | teamlinzer.com Reviews

https://teamlinzer.com

Saturday, August 9, 2014. Many hours of most days I am able to seem normal. Act normal. Even feel. Normal. There are the stolen moments during those days, when seeming, acting and feeling normal is simply not possible; moments which are generally contained to my alone time. Days like Quinn's first anniversary in heaven. It was the remaining 6 hours and 53 minutes of August 9th, 2013, and every succeeding day that now comprise 'the worst day(s) of my life'. An unbelievably well-attended wake. May 16th, wh...

INTERNAL PAGES

teamlinzer.com

1

linzer, party of five: Auld Lang Syne

http://www.teamlinzer.com/2013/01/auld-lang-syne.html

Thursday, January 3, 2013. I received the following email from my cousin Erin about two months ago:. Subject: Something for Quinn's List. Everyone should do the polar plunge in coney island on new years day. Not suggesting she gets wet. But a crazy (like me) carries her in with them to like their knees. It is actually fun and people wear costumes. A friend is a polar bear - maybe I could get her to be an honorary member! When Erin brought it up again, I said I would speak to Brett - knowing for sure.

2

linzer, party of five: Happy Birthday, Baby Girl

http://www.teamlinzer.com/2013/05/happy-birthday-baby-girl.html

Thursday, May 16, 2013. Happy Birthday, Baby Girl. Quinn had a fan-tabulous birthday party on Saturday at an historical carousel in our area, where I (and my siblings, mom, aunts, uncles, cousins, friends. basically everyone I know) used to go as a kid. More to come on the party itself later - we're still gathering photos from the party, and still have celebrations to come :). And in its spirit, I wanted to write and share my. Letter to Quinn on this, her First Birthday. Knew you were a girl. I'd den...

3

linzer, party of five: Niemann-Pick Type A

http://www.teamlinzer.com/p/niemann-pick.html

There is very little information available on Niemann-Pick Disease, Type A. And perhaps due to that very fact, much of the information that is available is inaccurate or misleading. The incidence rate of NPA is 1:250,000". There actually is no known incidence rate because. In New Zealand, the leading Niemann-Pick specialist has never come across an NPA case there, prior to treating Amber Jelsma (in fact, there have been no other known cases in Australasia) and has seen 1 adult with NPB. According to the ...

4

linzer, party of five: Goodbye to The Best Year of My Life

http://www.teamlinzer.com/2013/12/goodbye-to-best-year-of-my-life.html

Tuesday, December 31, 2013. Goodbye to The Best Year of My Life. 2013 A year that will live in infamy, no doubt. And yet I am having a tremendously hard time letting it go. Probably because while the worst thing that we could possibly endure happened on August 9th, the best thing that we could possibly hope for happened for the preceding 221 days of the same year. Our family was complete, and Quinn was our shining star. Summertime pops on the stoop. So proud of their platter for daddy's father's day gift.

5

linzer, party of five: A Thousand Words

http://www.teamlinzer.com/2013/11/a-thousand-words.html

Friday, November 22, 2013. We have been the recipients of generosity untold over the past 18 months. One of the greatest gifts we've been given - besides the almost 15 months we had with Quinn - was her lasting image. While iPhones and Instagram work wonders, nothing takes the place of a professional photographer and we were lucky enough to be offered the time and talents of a veritable consortium. Jen of Lightful Photography. Angela of Angela Marshall Photography. Lori of AvaJack Photography. November 2...

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wylderjames.com

Shunt Replacement |

http://wylderjames.com/home/current-happenings/shunt-replacement

Doc and Alexa’s Wedding. Mom’s 30th Birthday. Wylder’s Second Birthday. Dad’s 30th Bday/Sedona Trip. Cole’s AZ Trip. You Helped Us Celebrate! Wylder’s Third Birthday. 4th of July 2012. You are here: Home. We spent about 12 days int eh PICU for this and were very excited to get Wylder home sweet home. 3rd Annual Living Like A Warrior Gala. CLICK BELOW FOR YOUR GALA TICKETS TODAY. Meet Wylder the Whale. Get Wylder’s books HERE. Enter Your Email Address…. Subscribe to Wylder's Updates by Email.

wylderjames.com

Hope Kids Walk |

http://wylderjames.com/home/current-happenings/hope-kids-walk

Doc and Alexa’s Wedding. Mom’s 30th Birthday. Wylder’s Second Birthday. Dad’s 30th Bday/Sedona Trip. Cole’s AZ Trip. You Helped Us Celebrate! Wylder’s Third Birthday. 4th of July 2012. You are here: Home. 3rd Annual Living Like A Warrior Gala. CLICK BELOW FOR YOUR GALA TICKETS TODAY. Meet Wylder the Whale. Get Wylder’s books HERE. Enter Your Email Address…. Subscribe to Wylder's Updates by Email. On Genesis Theme Framework.

wylderjames.com

Wylder's Journey |

http://wylderjames.com/home/current-happenings

Doc and Alexa’s Wedding. Mom’s 30th Birthday. Wylder’s Second Birthday. Dad’s 30th Bday/Sedona Trip. Cole’s AZ Trip. You Helped Us Celebrate! Wylder’s Third Birthday. 4th of July 2012. You are here: Home. Click on Each of the Photos to learn about Wylder’s Journey From his first hospitalization to his memorial at sea July, 2012. To watch ‘REMEMBERING. To read Wylder’s entire medical journey from his birth to being laid to rest at sea, click here; MedJourneyWJL. FIRST HOSPITAL STAY (3 months old).

pelintozu.blogspot.com

pelintozu & arintozu: değişim başladı mı gerçekten?

http://pelintozu.blogspot.com/2015/06/degisim-baslad-m-gercekten.html

8 Haziran 2015 Pazartesi. Değişim başladı mı gerçekten? Ilkokulda yaşlarında falandım.artık o zamanki adı refah partisi miydi neydi işte malum zihniyet güzel bir oy oranı yakalamıştı seçimlerde.anneme ne zaman çarşaf giyeceğimizi sormuştum.o işler o kadar kolay değil demişti.takribi bir 20-25 senedir aynı korkuyla yaşıyoruz aslında biz bu ülkenin kadınları olarak, yediden yetmişe.haklarımızın hiç olacağı korkusu.bunu başka bir ülkenin kadınlarına anlatabilir miyiz bilmiyorum. Ben eksik kalayım boşver!

wylderjames.com

Wylder's Wheelchair |

http://wylderjames.com/home/current-happenings/wylders-wheelchair

Doc and Alexa’s Wedding. Mom’s 30th Birthday. Wylder’s Second Birthday. Dad’s 30th Bday/Sedona Trip. Cole’s AZ Trip. You Helped Us Celebrate! Wylder’s Third Birthday. 4th of July 2012. You are here: Home. Wylder’s new wheelchair … SO comfy! Custom Kid Kart lined with sheep wool. 3rd Annual Living Like A Warrior Gala. CLICK BELOW FOR YOUR GALA TICKETS TODAY. Meet Wylder the Whale. Get Wylder’s books HERE. Enter Your Email Address…. Subscribe to Wylder's Updates by Email. On Genesis Theme Framework.

wylderjames.com

Mount Sinai |

http://wylderjames.com/home/current-happenings/mount-sinai

Doc and Alexa’s Wedding. Mom’s 30th Birthday. Wylder’s Second Birthday. Dad’s 30th Bday/Sedona Trip. Cole’s AZ Trip. You Helped Us Celebrate! Wylder’s Third Birthday. 4th of July 2012. You are here: Home. 3rd Annual Living Like A Warrior Gala. CLICK BELOW FOR YOUR GALA TICKETS TODAY. Meet Wylder the Whale. Get Wylder’s books HERE. Enter Your Email Address…. Subscribe to Wylder's Updates by Email. On Genesis Theme Framework.

wylderjames.com

Feeding Tube |

http://wylderjames.com/home/current-happenings/feeding-tube

Doc and Alexa’s Wedding. Mom’s 30th Birthday. Wylder’s Second Birthday. Dad’s 30th Bday/Sedona Trip. Cole’s AZ Trip. You Helped Us Celebrate! Wylder’s Third Birthday. 4th of July 2012. You are here: Home. In August of 2010 Wylder had a Gastric surgical feeding tube (G-Tube) put in and his gall bladder removed. Dr. Notrica (head of Trauma at PCH) performed the. His digestions, sleeping, and daily. Calorie intake. … the tube is very effective. 3rd Annual Living Like A Warrior Gala. Meet Wylder the Whale.

wylderjames.com

Daily Breathing Treatments |

http://wylderjames.com/home/current-happenings/daily-breathing-treatments

Doc and Alexa’s Wedding. Mom’s 30th Birthday. Wylder’s Second Birthday. Dad’s 30th Bday/Sedona Trip. Cole’s AZ Trip. You Helped Us Celebrate! Wylder’s Third Birthday. 4th of July 2012. You are here: Home. 3rd Annual Living Like A Warrior Gala. CLICK BELOW FOR YOUR GALA TICKETS TODAY. Meet Wylder the Whale. Get Wylder’s books HERE. Enter Your Email Address…. Subscribe to Wylder's Updates by Email. On Genesis Theme Framework.

wylderjames.com

About Wylder |

http://wylderjames.com/home

Doc and Alexa’s Wedding. Mom’s 30th Birthday. Wylder’s Second Birthday. Dad’s 30th Bday/Sedona Trip. Cole’s AZ Trip. You Helped Us Celebrate! Wylder’s Third Birthday. 4th of July 2012. You are here: Home. What he did (in order well sort of). How he did it. He was a warrior. Enjoy this video we made of wylder’s amazing life. Http:/ www.youtube.com/watch? 3rd Annual Living Like A Warrior Gala. CLICK BELOW FOR YOUR GALA TICKETS TODAY. Meet Wylder the Whale. Get Wylder’s books HERE. On Genesis Theme Framework.

thebostonflinns.blogspot.com

Four Plus One Flinns: First Beach Day!

http://thebostonflinns.blogspot.com/2015/06/first-beach-day.html

Four Plus One Flinns. We are two parents, two kids, and a dog navigating our way through suburbia. Wednesday, June 24, 2015. D, L, and I woke up this morning and decided a trip to the beach was just necessary. Some school districts are still in session, but not us! That combined with 85 degrees and sun were the recipe for a perfect first beach day. Cheers to summer 2015! The best news of the day: Liam now likes the ocean! Subscribe to: Post Comments (Atom). View my complete profile. Linzer, party of five.

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linzer, party of five

Saturday, August 9, 2014. Many hours of most days I am able to seem normal. Act normal. Even feel. Normal. There are the stolen moments during those days, when seeming, acting and feeling normal is simply not possible; moments which are generally contained to my alone time. Days like Quinn's first anniversary in heaven. It was the remaining 6 hours and 53 minutes of August 9th, 2013, and every succeeding day that now comprise 'the worst day(s) of my life'. An unbelievably well-attended wake. May 16th, wh...

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