i-cah.org
FOR PATIENTS | I-CAH Registry
http://www.i-cah.org/for-patients
I-CAH seeks to support patients, children and parents by providing information, support and links, as well as developing research that will underpin improvements in the treatment of Congenital Adrenal Hyperplasia. I-CAH patient information sheet (child). I-CAH patient information sheets (adult). Congenital Adrenal Hyperplasia - Living with CAH Support Group (UK). Congenital Adrenal Hyperplasia adult information booklet - Dr G. Conway. CAH Support Group Links. CAH is Us - Parent and Patient support group.
cah.org.au
CAH Support Group Australia :: Products & Resources
http://www.cah.org.au/products-resources
General Links and Factsheets. Are you after good books and resources to do with CAH? The Support Group has sourced many great products in bulk and can provide them to you at extremely competitive prices. For offline orders, please download our product catalogue. USE OF PAYPAL IS LIMITED TO AUSTRALIAN-BASED CUSTOMERS ONLY. INTERNATIONAL CUSTOMERS PLEASE CONTACT THE CAHSGA PRODUCTS OFFICER. FOR GUIDANCE ON MAKING YOUR PURCHASE. Book CAH: A Parents' Guide. By CY Hsu and Scott Rivkees, MD. This booklet has b...
nzord.org.nz
NZORD - Rare disease support group directory
http://www.nzord.org.nz/support-groups
Skip to Primary Navigation. Skip to Secondary Navigation. Skip to Main Content. Skip to Utility Menu. Find a support group. Explore the NZORD site. How we can help. Living with a rare disease. What is a rare disease? Other New Zealanders’ stories. Stories from around the world. Press releases and submissions. Send us your story. Rare disease support group directory. Rare disease support group directory. NZORD has compiled a list of rare disease support groups. Can’t find your group? Phone: 07 896 7452.
cah.org.au
CAH Support Group Australia :: 2006 SA
http://www.cah.org.au/education/symposiums/2006
General Links and Factsheets. CAH Support Group Australia - Symposium 2006 Adelaide SA. Dr Jan Fairchild - Paediatric Endocrinologist. Women’s and Children’s Hospital. An overgrowth of the adrenal glands present at birth. At present in Australia, CAH occurs in 1/15,000 births. The outer zone of the adrenal glands are affected involving the production of. Aldosterone (control of salt/water). Androgens (much higher than normal in both boys and girls). Presentation of Classic CAH. Goals of CAH Management.
cah.org.au
CAH Support Group Australia :: Symposiums
http://www.cah.org.au/education/symposiums
General Links and Factsheets. Family Conference Days are a significant undertaking for a small volunteer committee; however, we aim to provide one for our members on a biennial basis. 2016 Symposium - Melbourne, Victoria. Featuring: Stress management, Adult Management and Monitoring, Transition from Child to Adolescent, Injection Demonstration, Focus Groups, and Products. Ella Latham Auditorium, The Royal Children's Hospital. Flemington Road, Parkville. Https:/ www.trybooking.com/216946. Thank you to Pfi...
cah.org.au
CAH Support Group Australia :: 2008 QLD
http://www.cah.org.au/education/symposiums/2008
General Links and Factsheets. CAH Support Group Australia - Symposium 2008 Brisbane QLD. We had another great Symposium this year, in Brisbane. There was a good turn out of local families and interstate travellers. In particular we would like to thank the staff at the Mater Children’s Hospital for getting behind our Symposium. We had a lot of help and it was wonderful to see so much support for families with CAH. Our first speaker was Dr Andrew Cotterill. Some of the topics covered were. Statistics of CA...
cah.org.au
CAH Support Group Australia :: 2009 VIC
http://www.cah.org.au/education/symposiums/2009
General Links and Factsheets. CAH Support Group Australia - Symposium 2009 Melbourne VIC. Melbourne Symposium 2009 Overview. For those who were able to attend this year, thank you for making the Symposium such a success. We were very grateful for the support from Monash Medical Centre in hosting this year’s Symposium. In addition to the feedback over the years to create a bigger session for focus groups we have also received feedback for more personal stories during the Symposium. We were very apprec...
congenitaladrenalhyperplasia.org
Congenital Adrenal Hyperplasia
http://www.congenitaladrenalhyperplasia.org/people.html
Maria I. New, M.D. CLAN: Caring and Living as Neighbours. Australian CAH support group. CAHNZ: New Zealand CAH Support Group. UK CAH support group. Great Ormond Street Parent and Patient Support Group. The MAGIC Foundation Homepage. Due to poorly written scripts this site may cause your computer to freeze up. We have notified the webmaster of the problem.). Dutch Cushings and Addisons Association. Also has some info for people with CAH). The Carlton Family Home Page.
nzordgroups.org.nz
NZORD (old) - Rare disease support group directory
http://www.nzordgroups.org.nz/support-groups
Skip to Primary Navigation. Skip to Main Content. Skip to Utility Menu. Explore the NZORD Site. Health Care and Support. Find us on Facebook. Subscribe to press releases and newsletters. Follow us on YouTube. NZORD accepts donations through Givealittle. New Zealand Organisation for Rare Disorders. PO Box 38-538,. 64 4 471 2226. Charities Commission Registration CC22512. Rare disease support group directory. NZORD has compiled a list of rare disease support groups. Can’t find your group? Phone: 07 896 7452.
