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debra.org.au

DEBRA Australia | Working for a life free from pain

DEBRA Australia is a charity that supports individuals, families & carers affected by Epidermolysis Bullosa - the worst disease you've never heard of.

http://debra.org.au/

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DEBRA Australia | Working for a life free from pain | debra.org.au Reviews

https://debra.org.au

DEBRA Australia is a charity that supports individuals, families & carers affected by Epidermolysis Bullosa - the worst disease you've never heard of.

INTERNAL PAGES

debra.org.au debra.org.au
1

EBCC 2013 Profiles | DEBRA Australia

http://www.debra.org.au/ebcrosscountry/ebcc-2013/ebcc-2013-profiles

Follow Your Dreams Grant. EB2015 Triennial Research Symposium. In Home EB Nurse Care. EB Health Professionals Day. Releases & Articles. Dine & Donate. The Million Dollar Run. Join Our Team In A Challenge Event. Create Your Own Event. Fundraise In The Workplace. DEBRA Australia Tea Towel. John Bacon – Rider and DEBRA Representative. I was born in:. I’m currently living in:. Sydney and Hunter Valley, with my wife Lyndall (but we are 100% Queenslanders! Most interesting person I’ve met:. Last ride, I swappe...

2

EBCC 2013 | DEBRA Australia

http://www.debra.org.au/ebcrosscountry/ebcc-2013

Follow Your Dreams Grant. EB2015 Triennial Research Symposium. In Home EB Nurse Care. EB Health Professionals Day. Releases & Articles. Dine & Donate. The Million Dollar Run. Join Our Team In A Challenge Event. Create Your Own Event. Fundraise In The Workplace. DEBRA Australia Tea Towel. Watch some of the highlights from the 2013 EB Cross Country Adventure Ride. 2013 EB Cross Country Adventure Ride Update. So the inaugural EB Cross Country Adventure Ride is over! And what a ride it was…. Our thanks must ...

3

EBCC 2014 Profiles | DEBRA Australia

http://www.debra.org.au/ebcrosscountry/ebcc-2014/ebcc-2014-profiles

Follow Your Dreams Grant. EB2015 Triennial Research Symposium. In Home EB Nurse Care. EB Health Professionals Day. Releases & Articles. Dine & Donate. The Million Dollar Run. Join Our Team In A Challenge Event. Create Your Own Event. Fundraise In The Workplace. DEBRA Australia Tea Towel. 8211; Gladstone 1966. 8211; Blackwater, Central Queensland. 8211; Heavy Machine Operator/Coal Miner. 8211; 2007 KTM 990 Adventure S. 8211; Work to Live not Live to Work, and enjoy it while your here. 8211; My Father.

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brighterdays.org.au brighterdays.org.au

Our Charities | The Brighter Days Foundation

http://www.brighterdays.org.au/our_charities.html

The two charities we have selected and that we hold very close to our hearts are;. The Cooper Trewin Memorial SUDC Research Fund. This fund was established after the tragic passing of Cooper Trewin on the 6th February 2010. At the age of 16 months Cooper passed away during his sleep for no apparent reason. More information can be found at www.sudc.com.au. Dear Kylie and Rob,. Very best regards,. Hannah C. Kinney, MD. A rare skin disease where the sufferers are missing the glue that holds the skin to the ...

storiesfromtheseat.com storiesfromtheseat.com

Stories from the Seat: A border crossing and an AK47

http://www.storiesfromtheseat.com/2012/07/border-crossing-and-ak47.html

Stories from the Seat. No Four Wheel Drives, No Fixers and No Fricken Whingers. Saturday, June 16, 2012. A border crossing and an AK47. We enjoyed another breakfast with Sven and once again he was quicker off the mark and was away 20 mins before us. The scenery once 'again was beautiful though quite sparse at times.On the right was China once again, as the day before, the fence following us a lot of the way. As we went higher it got freezing cold but thankfully for not as long. The 25 kms that ensued til...

storiesfromtheseat.com storiesfromtheseat.com

Stories from the Seat: May 2011

http://www.storiesfromtheseat.com/2011_05_01_archive.html

Stories from the Seat. No Four Wheel Drives, No Fixers and No Fricken Whingers. Sunday, May 1, 2011. For Easter 2010 - it was time to take Smooch on a serious off road ride.  This was to her used to camping of the bike and to see how we would go on dirt roads two-up. The trip was to be up to Kroombit Tops to Beautiful Betsy a wrecked WWII Liberator Bomber that had crashed on a passenger to run to Brisbane. Posted by Craig Iedema. Subscribe to: Posts (Atom). Pigs Arse Tour 2010. Go to Horizons Unlimited.

storiesfromtheseat.com storiesfromtheseat.com

Stories from the Seat: The Route

http://www.storiesfromtheseat.com/p/route.html

Stories from the Seat. No Four Wheel Drives, No Fixers and No Fricken Whingers. Our route very roughly will look like this. View UK to Validvostok. In a larger map. Subscribe to: Posts (Atom). Stories from the Seat proudly supports DebRA Australia. All Advertising Revenue from this site is donated to them. Pigs Arse Tour 2010. Hi from Craig and Sharon. We are currently getti. Go to Horizons Unlimited. The website that's all about motorcycle travel. Travellers Community, Bike Travel information.

scottmacfarlane.me scottmacfarlane.me

DEBRA Australia – ScottMacfarlane.me

http://www.scottmacfarlane.me/portfolio/debra-australia

Bull; About Me. Bull; Email Me. Development and maintenance of website. Bi-monthly newsletters (MailChimp and Print). Design of charity event book (Blurb). Design of charity event book (Blurb). Creation of print materials.

abregen.com abregen.com

AbRegen Pty Ltd

http://www.abregen.com/therapeutic_focus

Inherited EB is caused by mutations to structural proteins in the skin. Patients with dystrophic EB have mutations within the gene for type VII collagen, resulting in deficient or absent anchoring fibrils. Separation of the epidermis from the dermis can occur with even minor trauma, resulting in blister formation. For further information on EB:. 2014 AbRegen Pty Ltd.

sutherlandmedical.com.au sutherlandmedical.com.au

Epidermolysis Bullosa (EB) | Sutherland Medical

http://www.sutherlandmedical.com.au/epidermolysis-bullosa-eb

Tubular & Sports Bandaging. Stocking & Bandage Applicators. Woundcare & Compression. Support & Immobilisation. Back & Abdominal Braces. Knee Immobilisers & Wrist Splints. Neck Braces, Collar Care & Arm Slings. Pouches & Reels. Urology & Haemodialysis. Misc Medical & First Aid. Online Shop SM Direct. Distributors – Where to buy? 8211; Main menu – -. Tubular & Sports Bandaging. Stocking & Bandage Applicators. Woundcare & Compression. Support & Immobilisation. Back & Abdominal Braces. Pouches & Reels. Suthe...

opendoorrealestate.com.au opendoorrealestate.com.au

Open Door Real Estate - Community Support | Open Door Real Estate

http://www.opendoorrealestate.com.au/our-story/community-support

For Sale Open Homes. FAQ’s For Tenants. FAQ’s for Landlords. The Open Door Real Estate Story…. Meet The Team…. Open Door Real Estate TV. Meet The Team…. Quiz Night and Art Auction raised over $5,000 for DEBRA. After the incredible success of the Art Auction as part of our Christmas Party 2013 we wanted to continue our support for DEBRA. One of the best quiz masters in town, EB ambassador Kate Turner for her courageous speech and the winners of the $1,000 prize money who donated $500 back towards DEBRA.

pennylanepatchwork.blogspot.com pennylanepatchwork.blogspot.com

PENNYLANE PATCHWORK: Butterfly Quilt

http://pennylanepatchwork.blogspot.com/2014/07/butterfly-quilt.html

Monday, July 28, 2014. I have been working on a quilt to be raffled for DEBRA. Ssociation), a not for profit volunteer based organisation that does not receive any direct Government funding. I have stitched butterflies similar to their logo flitting over the quilt with some flowers similar in design to the butterflies. There is a lovely potted plant as second prize. You will find these in the waiting room at St Vincent's Hospital Toowoomba. Tickets $2.00 each. Contact me if you would like to buy a ticket!

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Psychologische en psychosociale gevolgen. 24 maart 2018 Dag voor ouders/verzorgers van kinderen met EB! Meld u hier aan! Vereniging voor Epidermolysis Bullosa Patiënten. Psychologische en psychosociale gevolgen. Div wk-panel', row:true}" data-wk-grid-margin. Bedankt PSR Orphan Experts. Bedankt teams, en bedankt Charity Angels. Tamara, Seema en Eveline! We zijn er heel blij mee en gaan iets moois organiseren voor kinderen met EB! Monarch Rally 22 april. De leden van Rotaryclub Emmen Monarch. Er zijn versc...

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Debra Norge: Hovedside

Kompetansesentre for EB og offentlige linker. Er en landsomfattende interesseorganisasjon for personer med Epidermolysis Bullosa (EB). Organisasjonen er partipolitisk og religiøst nøytral og skal arbeide for å bedre situasjonen for personer med EB. Webinar 28. mars 2018. DEBRA international arrangerer webinar for å presentere siste nytt om et pågående forskningsprosjekt. Webinaret er åpent for alle. Https:/ www.facebook.com/events/2141867052708731/? DEBRA INTERNATIONAL CONGRESS 2018. Høstens store DEBRA ...

debra.org debra.org

Debra of America - Dystrophic Epidermolysis Bullosa Research Association

Skip to the navigation. Skip to the content. Current Research Trials for Epidermolysis Bullosa. Int'l Research Symposium. What is debra of America. Staff and Board of Directors. Annual Reports and Financials. Debra of America Brochure. EB in the News. Government Affairs and Legal Aid. Registry of EB Physicians. Occupational and Physical Therapy. Help for New Parents. Help for New Parents. Fundraise for debra of America. Plan a Supporter Led Event. Share our Logos and Banners. Debra of America Events.

debra.org.au debra.org.au

DEBRA Australia | Working for a life free from pain

Follow Your Dreams Grant. EB2015 Triennial Research Symposium. In Home EB Nurse Care. EB Health Professionals Day. Releases & Articles. Dine & Donate. Melbourne Market Charity Golf Day. Join Our Team In A Challenge Event. Create Your Own Event. Fundraise In The Workplace. DEBRA Australia Tea Towel. Help the fight against EB. Coming in May 2018. Registrations now open. DEBRA Australia Working for a life free from pain. For more information check out What is EB? Click Here To Donate. What Can You Do? By le...

debra.org.mx debra.org.mx

Fundación DEBRA México A.C. – mejorando la calidad de vida de las personas con Epidermolisis Bullosa

Fundación DEBRA México A.C. Mejorando la calidad de vida de las personas con Epidermolisis Bullosa. Bienvenido a DEBRA México. La Fundación DEBRA México es una organización voluntaria, sin fines de lucro, dedicada a promover la investigación y la educación sobre la Epidermolisis Bullosa (EB), además de proporcionar servicios y apoyo a las personas con Epidermolisis Bullosa y a sus familias. Estamos dedicados a mejorar la calidad de vida de los pacientes con EB y de sus familias.

debra.org.nz debra.org.nz

Homepage DEBRA NZ | DEBRA New Zealand

Improving the quality of life of all people with Epidermolysis Bullosa. EB) and their families. DEBRA NZ family camp 2013. Welcome to DEBRA New Zealand. We are the Kiwi charity working on behalf of people with the rare skin blistering condition Epidermolysis Bullosa (EB). We are counting down to the 13 September! Tickets can be bought as a donation on our givealittle. Page for $20.00 each. Please give Tango as a reference (make sure your name is there). Or else online through eventfinder. Or other gentle...

debra.org.rs debra.org.rs

Debra - Naslovna

Scaron;ta je bulozna epidermoliza. Naše priče. Humanitarni događaj u Arilju. Stanislav Prvulović - heroj Beogradskog maratona. Danas, 26.05.2017. u Skupštini grada Beograda dodeljena su posebna priznanja povodom 30. Beogradskog maratona i proglašeni Heroji 30. Beogradskog maratona. Zahvalnica za posebna dostignuća dodeljena je našem Stanislavu Prvuloviću, dugogodišnjem učesniku Trke zadovoljstva. Miteco - Beogradski maraton. Kompanija Miteco Kneževac. Delta holding - Beogradski maraton. 23 marta 2017&#46...

debra.org.uk debra.org.uk

DEBRA | For people whose skin doesn't work, we do

We use cookies to improve your experience of our site. By continuing to browse the site you are agreeing to our use of cookies. Continue. Data-cycle-pager="#pager .container" data-cycle-pager-active-class="activeSlide". Our Royal Patron's Portrait Raises EB Awareness. DEBRA Member James Dunn's perfect portrait of our Royal Patron, Sophie, Countess of Wessex, features in Hello! Read all about it. THE FIGHT LIVES ON. Annual Members' Weekend and AGM 2018. Members' Weekend and AGM 2018 is now fully booked!

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