myositisandme.blogspot.com

Myositis and Me

Monday, March 19, 2012. 15 Years since it began. It's been a very long time since I posted anything to this blog, but I had a brief conversation on Twitter over the weekend that made me think about it again. It's been 15 years since my myositis journey began and I took a few minutes to browse through a few of my posts as a reminder of how far I have come. I still struggle with the prednisone weight. I'm not the same person I was before this came into my life. Wednesday, October 6, 2010. So Dr Jeff got hi...

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Myositis and Me | myositisandme.blogspot.com Reviews

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Monday, March 19, 2012. 15 Years since it began. It's been a very long time since I posted anything to this blog, but I had a brief conversation on Twitter over the weekend that made me think about it again. It's been 15 years since my myositis journey began and I took a few minutes to browse through a few of my posts as a reminder of how far I have come. I still struggle with the prednisone weight. I'm not the same person I was before this came into my life. Wednesday, October 6, 2010. So Dr Jeff got hi...

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Myositis and Me | myositisandme.blogspot.com Reviews

https://myositisandme.blogspot.com

Monday, March 19, 2012. 15 Years since it began. It's been a very long time since I posted anything to this blog, but I had a brief conversation on Twitter over the weekend that made me think about it again. It's been 15 years since my myositis journey began and I took a few minutes to browse through a few of my posts as a reminder of how far I have come. I still struggle with the prednisone weight. I'm not the same person I was before this came into my life. Wednesday, October 6, 2010. So Dr Jeff got hi...

INTERNAL PAGES

myositisandme.blogspot.com

1

Myositis and Me: We Need to Change Things Up

http://myositisandme.blogspot.com/2010/06/we-need-to-change-things-up.html

Tuesday, June 1, 2010. We Need to Change Things Up. After being treated with Prednisone and Plaquenil for about a year, the doctor was becoming concerned with the side effects of the Prednisone. The weight gain, water retention, infections, increased risk of bone loss, sleep issues and the fact that I seemed to hit a wall where the medicine was just not improving my condition any more were enough for him to make a change. The doctor started me at 10mg of methotrexate. I think he thought it would be e...

2

Myositis and Me: Starting to see improvements- but wait, there's more...

http://myositisandme.blogspot.com/2010/08/starting-to-see-imporvements-but-wait.html

Monday, August 23, 2010. Starting to see improvements- but wait, there's more. Things seem to be looking up. My hair is growing back and my muscle pain is improving. It should be smooth sailing now! Hold on. not so fast. It started with just a few on my abdomen. When they became extremely sore, I saw a surgeon to have them removed and sent off to find out what they were. It turned out to be calcinosis with fat necrosis. Simply put, calcium deposits with dead fat tissue surrounding them. I have always had...

3

Myositis and Me: "Someone has a really bad sunburn!"

http://myositisandme.blogspot.com/2010/03/someone-has-really-bad-sunburn.html

Thursday, March 4, 2010. Someone has a really bad sunburn! When my symptoms first appeared and I was prescribed 40mg of prednisone per day, my condition improved significantly. After I had tapered the dose down, I became significantly worse than I was in the beginning. That's not exactly what happened. One thing that I never thought about in the beginning was how people viewed me when I went out in public. Even before I began losing my hair, the rash was pronounced and would garner double takes and stare...

4

Myositis and Me: I look like I lost a fight with a pencil eraser

http://myositisandme.blogspot.com/2010/10/i-look-like-i-lost-fight-with-pencil.html

Wednesday, October 6, 2010. I look like I lost a fight with a pencil eraser. During the visit with Dr. Jeff when he offered to treat the rash on my face at no cost to me, he took the "before" pics. So Dr Jeff got his pictures and scheduled an appointment for my first laser treatment. I was given a topical anesthetic gel to apply an hour in advance. He also instructed me to place plastic wrap over the gel to help my skin absorb the gel prior to treatment. Once the bruising started, they were perfectly rou...

5

Myositis and Me: February 2010

http://myositisandme.blogspot.com/2010_02_01_archive.html

Thursday, February 25, 2010. As I mentioned previously, at the time my symptoms started I was in a new relationship and my kids were 9 and 10 years old. I'm not really sure what went through mys kids minds as I struggled with DM. I could tell they both became protective of me and my daughter wanted to help me a lot. I know it was scary and difficult for them at times but I tried to keep things as normal as possible. Why would anyone stay in a relatively new relationship with all that going on? I am not r...

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kristina64.wordpress.com

The best news yet | Everyday is the First Day

https://kristina64.wordpress.com/2013/02/02/the-best-news-yet

Everyday is the First Day. Working to become fit…. one day at a time. Try something new. You may surprise yourself. Move on →. The best news yet. February 2, 2013. 8220;You can’t lose weight when you have untreated sleep apnea”. That’s what the neurologist told me on May 7, 2012 as I sat in his office just after he revealed that I had moderate sleep apnea. I needed to start using a CPAP machine. OK If I can’t lose wight with untreated sleep apnea, what can I do once it’s being treated? Once I’d bee...

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Muscle or Skin Biopsy. New treatments under study. Find a Physical Therapist. Patients Living with Myositis. TMA Grants and Fellowships. Long Term Investment fund. More Ways To Help. Scroll to the bottom of the homepage and click on Resources or About TMA. Read more. 2015 Annual Patient Conference. Sept 10-13, Updated Conference Agenda now Available! Read past and current issues of TMA's quarterly newsletter Read more. Do you have IBM and are attending the 2015 Annual Patient Conference? Novartis is acti...

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myositisandme.blogspot.com

Myositis and Me

Monday, March 19, 2012. 15 Years since it began. It's been a very long time since I posted anything to this blog, but I had a brief conversation on Twitter over the weekend that made me think about it again. It's been 15 years since my myositis journey began and I took a few minutes to browse through a few of my posts as a reminder of how far I have come. I still struggle with the prednisone weight. I'm not the same person I was before this came into my life. Wednesday, October 6, 2010. So Dr Jeff got hi...

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Balancing Food and vitamin/mineral supplements. Department Works and Pensions. Creatine Kinase Blood test. CT or CAT Scan. Muscles of the Body. Welcome to Myositis in Focus. I have set up this site Myositis in focus. My Journey with Myositis. Update January 9th 2012. Update September 22nd 2012. So we look forward to the rest of the year and hope to carry on making slow but positive progress and I will update again at the end of the year. Update 23rd December 2015. On the swallowing front I am now eating ...