myositisdave.blogspot.com

Some more of my ramblings......

Some more of my ramblings. Well I'm new to this so treat me kindly. I'm not going to be a regular blogger but just when I think I've got something to say. Please feel free to comment on anything I write. Friday, 28 February 2014. Rare Disease Day 2014. Today, 28th February 2014, is Rare Disease Day. There are over 6,000 rare diseases and these effect 1 in 20 of the population. That's 3,500,000 people here in the UK. Limited Cutaneous Systemic Sclerosis Overlap. Pulmonary Fibrosis (NSIP Stable). I use a B...

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Some more of my ramblings...... | myositisdave.blogspot.com Reviews

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Some more of my ramblings. Well I'm new to this so treat me kindly. I'm not going to be a regular blogger but just when I think I've got something to say. Please feel free to comment on anything I write. Friday, 28 February 2014. Rare Disease Day 2014. Today, 28th February 2014, is Rare Disease Day. There are over 6,000 rare diseases and these effect 1 in 20 of the population. That's 3,500,000 people here in the UK. Limited Cutaneous Systemic Sclerosis Overlap. Pulmonary Fibrosis (NSIP Stable). I use a B...

<META> KEYWORDS

1 raynauds phenomenon

2 steroid induced diabetes

3 hypertension

4 lymphoedema

5 rosis

6 posted by

7 dave wood

8 1 comment

9 email this

10 blogthis

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Some more of my ramblings...... | myositisdave.blogspot.com Reviews

https://myositisdave.blogspot.com

Some more of my ramblings. Well I'm new to this so treat me kindly. I'm not going to be a regular blogger but just when I think I've got something to say. Please feel free to comment on anything I write. Friday, 28 February 2014. Rare Disease Day 2014. Today, 28th February 2014, is Rare Disease Day. There are over 6,000 rare diseases and these effect 1 in 20 of the population. That's 3,500,000 people here in the UK. Limited Cutaneous Systemic Sclerosis Overlap. Pulmonary Fibrosis (NSIP Stable). I use a B...

INTERNAL PAGES

myositisdave.blogspot.com

1

Some more of my ramblings......: How do you cope?

http://www.myositisdave.blogspot.com/2014/02/how-do-you-cope.html

Some more of my ramblings. Well I'm new to this so treat me kindly. I'm not going to be a regular blogger but just when I think I've got something to say. Please feel free to comment on anything I write. Thursday, 13 February 2014. How do you cope? Now I'm not going to tell you that I've got the answer to what attitude will help you best, or that you should follow my example. Each of us, needs to find our own ways of coping that work for us. To me there are two ways of going. One is that it can overw...

2

Some more of my ramblings......: A sightseeing trip to hospital.

http://www.myositisdave.blogspot.com/2014/02/a-sightseeing-trip-to-hospital.html

Some more of my ramblings. Well I'm new to this so treat me kindly. I'm not going to be a regular blogger but just when I think I've got something to say. Please feel free to comment on anything I write. Monday, 24 February 2014. A sightseeing trip to hospital. Last Wednesday was time for my regular 6 weekly infusion of Methylprednisolone at the Royal Free Hospital in Hampstead, London. We cross the river Thames over Vauxhall Bridge, passed the MI6 Building. When we get over the river, we turn right ...

3

Some more of my ramblings......: April 2013

http://www.myositisdave.blogspot.com/2013_04_01_archive.html

Some more of my ramblings. Well I'm new to this so treat me kindly. I'm not going to be a regular blogger but just when I think I've got something to say. Please feel free to comment on anything I write. Monday, 29 April 2013. A Truly Sensational Tuesday (Part 1). So here we are with details of my morning appointment from last Tuesday. Not quite as sensational as my feat of standing in the afternoon but still worth telling you all about. After this we discussed "Fatigue Management". I have noticed th...

4

Some more of my ramblings......: The first hospital trip of 2014

http://www.myositisdave.blogspot.com/2014/01/the-first-hospital-trip-of-2014.html

Some more of my ramblings. Well I'm new to this so treat me kindly. I'm not going to be a regular blogger but just when I think I've got something to say. Please feel free to comment on anything I write. Sunday, 12 January 2014. The first hospital trip of 2014. Well, Wednesday last week was my first trip to hospital for the New Year. Well I needn't have worried. As good as his word he is with me at 6.00 am, and he gets me up, showered and dressed. We take the normal route into London, through Thornton He...

5

Some more of my ramblings......: September 2013

http://www.myositisdave.blogspot.com/2013_09_01_archive.html

Some more of my ramblings. Well I'm new to this so treat me kindly. I'm not going to be a regular blogger but just when I think I've got something to say. Please feel free to comment on anything I write. Monday, 30 September 2013. Two weeks of standing up. It is now 2 weeks since I took delivery of my Levo C3 stand up powered wheelchair, and I thought I'd give you an idea of how things are going. From there its just a case of standing. At first I was standing for about 5-6 minutes, but all last week ...

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polymyowhat.com

Sitemap

http://polymyowhat.com/sitemap

Facebook group goals and info. Facebook group goals & info. View the Sitemap below to help navigate our site. Become an Author for Polymyowhat. Inclusion Body Myositis (IBM). OVERCOMING Polymyositis Part III – Still Healthy! OVERCOMING Polymyositis Part II – Taking Back My Health. Myositis Awareness – An informational journey. Inclusion Body Myositis (IBM). Ups and Downs with IBM. 8220;Bionic” A Poem by Tanner Reiss. Kinser has Juvenile Dermatomyositis. Facebook group, goals and the future of Polymyowhat.

polymyowhat.com

Myositis

http://polymyowhat.com/category/myositis

Facebook group goals and info. Facebook group goals & info. Polymyowhat is now Myositis Support and Understanding. August 21, 2015. There have been many changes, a ton of hard work, and some exciting successes since the start of Polymyowhat, now Myositis Support and Understanding Association, Inc., (MSU) a registered 501(c)(3) nonprofit organization. Support group for myositis. Facebook group, goals and the future of Polymyowhat. April 16, 2014. Myositis Support and Plans: Help spread the word! Plaguing ...

polymyowhat.com

facebook group polymyowhat

http://polymyowhat.com/tag/facebook-group-polymyowhat

Facebook group goals and info. Facebook group goals & info. Posts tagged "facebook group polymyowhat". Raquo; Posts tagged "facebook group polymyowhat". Facebook group, goals and the future of Polymyowhat. April 16, 2014. Myositis Support and Plans: Help spread the word! January 25, 2014. Share our group on Twitter with TMA! Support group for myositis. Polymyowhat is now Myositis Support and Understanding. Facebook group, goals and the future of Polymyowhat. 8220;Bionic” A Poem by Tanner Reiss. Juvenile ...

polymyowhat.com

Myositis Awareness – An informational journey

http://polymyowhat.com/2010/09/myositis-awareness

Facebook group goals and info. Facebook group goals & info. Myositis Awareness – An informational journey. September 29, 2010. Raquo; Myositis Awareness – An informational journey. Myositis Awareness – An informational journey. The four types of myositis, also known as Inflammatory Myopathies are. I thought I knew myself well enough to distinguish if I was just being lazy and wanted to be sick (for some reason? Myositis Treatments: Not too many. I thank you all for taking the time to read about myositis ...

polymyowhat.com

Myositis Support

http://polymyowhat.com/category/myositis-support-2

Facebook group goals and info. Facebook group goals & info. Raquo; Myositis Support. Polymyowhat is now Myositis Support and Understanding. August 21, 2015. There have been many changes, a ton of hard work, and some exciting successes since the start of Polymyowhat, now Myositis Support and Understanding Association, Inc., (MSU) a registered 501(c)(3) nonprofit organization. Support group for myositis. Facebook group, goals and the future of Polymyowhat. April 16, 2014. January 25, 2014. Health and Help ...

polymyowhat.com

Kinser has Juvenile Dermatomyositis

http://polymyowhat.com/2014/01/kinser-juvenile-dermatomyositis

Facebook group goals and info. Facebook group goals & info. Kinser has Juvenile Dermatomyositis. January 19, 2014. Raquo; Juvenile Dermatomyositis. Raquo; Kinser has Juvenile Dermatomyositis. Kinser has Juvenile Dermatomyositis. The I really HATE asking for donations short novel. Author: Pauline Sedlock Plotner Lenz. Okay, seriously, I was always one of those people who thought to myself if I saw one more person begging for money for a disease for children, I was going to scream! 8211; No, it’s not true.

polymyowhat.com

“Bionic” A Poem by Tanner Reiss

http://polymyowhat.com/2014/01/bionic-poem-tanner-reiss

Facebook group goals and info. Facebook group goals & info. 8220;Bionic” A Poem by Tanner Reiss. January 23, 2014. Raquo; Juvenile Dermatomyositis. Raquo; “Bionic” A Poem by Tanner Reiss. 8220;Bionic” A Poem by Tanner Reiss. Watch me break free. Watch me begin to strengthen. Watch me once again become me. Though my body might be toxic unto itself my mind will never falter, nor fall to the games this Hospital bed plays. 8220;Watch me break free from this attack that binds me. Simply though, watch me be.

polymyowhat.com

support group for myositis

http://polymyowhat.com/tag/support-group-for-myositis

Facebook group goals and info. Facebook group goals & info. Posts tagged "support group for myositis". Raquo; Posts tagged "support group for myositis". Polymyowhat is now Myositis Support and Understanding. August 21, 2015. There have been many changes, a ton of hard work, and some exciting successes since the start of Polymyowhat, now Myositis Support and Understanding Association, Inc., (MSU) a registered 501(c)(3) nonprofit organization. Support group for myositis. January 25, 2014. January 19, 2014.

polymyowhat.com

family support

http://polymyowhat.com/tag/family-support

Facebook group goals and info. Facebook group goals & info. Posts tagged "family support". Raquo; Posts tagged "family support". Kinser has Juvenile Dermatomyositis. January 19, 2014. Then a ‘ONE MINUTE (actually a 30 second tops) phone call from my daughter changed everything. August 6th, 2010 my life totally changed in less then one minute. One damn phone call, and I was ready to give my life back to God in return for Kinser’s. I remember that call word for word. Mama it’s BAD! January 19, 2014. And Je...

polymyowhat.com

Juvenile Dermatomyositis

http://polymyowhat.com/category/myositis/juvenile-dermatomyositis

Facebook group goals and info. Facebook group goals & info. Raquo; Juvenile Dermatomyositis. 8220;Bionic” A Poem by Tanner Reiss. January 23, 2014. Watch me break free. Watch me begin to strengthen. Watch me once again become me. Though my body might be toxic unto itself my mind will never falter, nor fall to the games this Hospital bed plays. Plaguing dreams with worst out-come scenes. For the voices of so many strangers’ rings out with echoes of hope, love, and encouragement. January 19, 2014. Facebook...

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OTHER SITES

myositis.org.uk

Myositis UK | Juvenile Dermatomyositis, Adult Dermatomyositis & Polymyositis, Inclusion Body Myositis (IBM)

Fundraising, Events and Donations. Myositis UK is a registered charity providing information and support to individuals and their families affected by Dermatomyositis, Polymyositis, Inclusion Body Myositis and Juvenile Dermatomyositis. The charity raises funds to promote medical research to improve the diagnosis, treatment, management and understanding of these rare inflammatory myopathies. Read more about Myositis UK (formerly Myositis Support Group). Raquo; More info. Raquo; More info. Raquo; More info.

myositis.secure.nonprofitsoapbox.com

TMA - The Myositis Association

Muscle or Skin Biopsy. New treatments under study. Find a Physical Therapist. Patients Living with Myositis. TMA Grants and Fellowships. Long Term Investment fund. More Ways To Help. Scroll to the bottom of the homepage and click on Resources or About TMA. Read more. 2015 Annual Patient Conference. Sept 10-13, Updated Conference Agenda now Available! Read past and current issues of TMA's quarterly newsletter Read more. Do you have IBM and are attending the 2015 Annual Patient Conference? Novartis is acti...

myositis.wordpress.com

Holy Cow We're Doing It! | 9 months at play

Holy Cow We're Doing It! 9 months at play. Asymp; 1 Comment. 8221; Ouch, Noah takes offence and deflates, stomping off. “We’re in an apartment shhh! 8221;, ” shhhh” I hiss, I hear her stomp loudly down the stairs our elevator stops at floor 5. “That was Chloe pressing the button” Noah says. I say “Noah that’s why wars are started people jumping to conclusions. How do you know it was Chloe? Chloe getting a bucket of cold water thrown on her by Noah. Rainy day in Tuilleries Garden. Noah reading Horrible Hi...

myositisandme.blogspot.com

Myositis and Me

Monday, March 19, 2012. 15 Years since it began. It's been a very long time since I posted anything to this blog, but I had a brief conversation on Twitter over the weekend that made me think about it again. It's been 15 years since my myositis journey began and I took a few minutes to browse through a few of my posts as a reminder of how far I have come. I still struggle with the prednisone weight. I'm not the same person I was before this came into my life. Wednesday, October 6, 2010. So Dr Jeff got hi...

myositisaustralia.com

www.myositisaustralia.com

myositisdave.blogspot.com

Some more of my ramblings......

Some more of my ramblings. Well I'm new to this so treat me kindly. I'm not going to be a regular blogger but just when I think I've got something to say. Please feel free to comment on anything I write. Friday, 28 February 2014. Rare Disease Day 2014. Today, 28th February 2014, is Rare Disease Day. There are over 6,000 rare diseases and these effect 1 in 20 of the population. That's 3,500,000 people here in the UK. Limited Cutaneous Systemic Sclerosis Overlap. Pulmonary Fibrosis (NSIP Stable). I use a B...

myositisfriendssupportgroup.com

Senior-Computer-Help

Helping Seniors with Home Computers. Sorry, but you are looking for something that isn’t here. Designed by MLM Edge.

myositisfriendssupportgroup.info

Senior-Computer-Help

Helping Seniors with Home Computers. Sorry, but you are looking for something that isn’t here. Designed by MLM Edge.

myositisinfocus.weebly.com

Myositis in Focus - Myositis in Focus

Balancing Food and vitamin/mineral supplements. Department Works and Pensions. Creatine Kinase Blood test. CT or CAT Scan. Muscles of the Body. Welcome to Myositis in Focus. I have set up this site Myositis in focus. My Journey with Myositis. Update January 9th 2012. Update September 22nd 2012. So we look forward to the rest of the year and hope to carry on making slow but positive progress and I will update again at the end of the year. Update 23rd December 2015. On the swallowing front I am now eating ...

myositisnow.com

Home - Myositis Now- Raising Awareness for Polymyositis and Dermatomyositis

Helping raise awareness of Myositis. Welcome to Myositis Now. Being diagnosed with Myositis can be very difficult to cope with because it’s not a common disease. If you have been diagnosed with Polymyositis. One of the best things to do is educate yourself about the disease and so you can overcome the challenges that come with it.

myositisnw.org

Welcome to myositisnw.org. This domain is parked free of charge with NameSilo.com. NameSilo offers the cheapest domains on the Internet as well as:. FREE Parking (you keep 100% of the revenue! Industry Leading Domain Security. Powerful Domain Management Tools. Fast, Simple and Easy Processes. Myositisnw.org Privacy Policy.