Rare Disease Cycling Team races bicycles to raise awareness for and promote the development of therapies across a broad range of orphan diseases. Join us!
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Cycling to find a cure for rare diseases - Rare Disease Cycling | rarediseasecycling.org Reviews
https://rarediseasecycling.org
Rare Disease Cycling Team races bicycles to raise awareness for and promote the development of therapies across a broad range of orphan diseases. Join us!
rarediseasecycling.org
Tanguy Opens Season with 2nd Place Finish at Cohutta - Rare Disease Cycling
http://rarediseasecycling.org/2015/04/tanguy-opens-season-with-2nd-place-finish-at-cohutta
Million Dollar Bike Ride. Million Dollar Bike Ride. AEC v1.0.4. Join us for Rare Disease Day to recognize the rare disease community at Keswick Cycle 4040 Locus St on Feb 29 5:30-7:30 #PennMedMDBR2016. About 7 months ago. From Rare Disease Cycling's Twitter. Via Twitter Web Client. Tanguy's 2nd @ #SM100. From Rare Disease Cycling's Twitter. Via Twitter Web Client. Tanguy takes NUE Series lead w/2nd Place Finish @ Wilderness 101 goo.gl/G1MhqZ. About a year ago. From Rare Disease Cycling's Twitter. The rai...
Membership - Rare Disease Cycling
http://rarediseasecycling.org/membership
Million Dollar Bike Ride. Million Dollar Bike Ride. AEC v1.0.4. Join us for Rare Disease Day to recognize the rare disease community at Keswick Cycle 4040 Locus St on Feb 29 5:30-7:30 #PennMedMDBR2016. About 7 months ago. From Rare Disease Cycling's Twitter. Via Twitter Web Client. Tanguy's 2nd @ #SM100. From Rare Disease Cycling's Twitter. Via Twitter Web Client. Tanguy takes NUE Series lead w/2nd Place Finish @ Wilderness 101 goo.gl/G1MhqZ. About a year ago. From Rare Disease Cycling's Twitter. 20% off...
Instagram Feed - Rare Disease Cycling
http://rarediseasecycling.org/instagram-feed
Million Dollar Bike Ride. Million Dollar Bike Ride. AEC v1.0.4. Join us for Rare Disease Day to recognize the rare disease community at Keswick Cycle 4040 Locus St on Feb 29 5:30-7:30 #PennMedMDBR2016. About 7 months ago. From Rare Disease Cycling's Twitter. Via Twitter Web Client. Tanguy's 2nd @ #SM100. From Rare Disease Cycling's Twitter. Via Twitter Web Client. Tanguy takes NUE Series lead w/2nd Place Finish @ Wilderness 101 goo.gl/G1MhqZ. About a year ago. From Rare Disease Cycling's Twitter.
Sponsors - Rare Disease Cycling
http://rarediseasecycling.org/sponsors
Million Dollar Bike Ride. Million Dollar Bike Ride. AEC v1.0.4. Join us for Rare Disease Day to recognize the rare disease community at Keswick Cycle 4040 Locus St on Feb 29 5:30-7:30 #PennMedMDBR2016. About 7 months ago. From Rare Disease Cycling's Twitter. Via Twitter Web Client. Tanguy's 2nd @ #SM100. From Rare Disease Cycling's Twitter. Via Twitter Web Client. Tanguy takes NUE Series lead w/2nd Place Finish @ Wilderness 101 goo.gl/G1MhqZ. About a year ago. From Rare Disease Cycling's Twitter.
Tanguy Victorious at Mohican 100 - Rare Disease Cycling
http://rarediseasecycling.org/2015/06/tanguy-victorious-at-mohican-100
Million Dollar Bike Ride. Million Dollar Bike Ride. AEC v1.0.4. Join us for Rare Disease Day to recognize the rare disease community at Keswick Cycle 4040 Locus St on Feb 29 5:30-7:30 #PennMedMDBR2016. About 7 months ago. From Rare Disease Cycling's Twitter. Via Twitter Web Client. Tanguy's 2nd @ #SM100. From Rare Disease Cycling's Twitter. Via Twitter Web Client. Tanguy takes NUE Series lead w/2nd Place Finish @ Wilderness 101 goo.gl/G1MhqZ. About a year ago. From Rare Disease Cycling's Twitter. The cov...
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2014 Disease Teams Archives - Million Dollar Bike Ride | Penn Medicine Orphan Disease Center
http://www.milliondollarbikeride.org/t/diseaseteams2014
8212; Main Menu —. The Stop ALD Foundation. Stop ALD Penn Giving Page. Pitt Hopkins Giving Page. The Easy Breathers Giving Page. Penn Scientists for Orphan Disease Research. Spin Factor for Hemophilia. Bike To End Duchenne. Bike to End Duchenne Giving Page. Raring to Go for CHI. Congenital Muscular Dystrophies Cure CMD Giving Page. Niemann Pick Type C. Tay-Sachs, Sandhoff, GM1, and Canavan. Team MPS Giving Page. Suite 2000 Translational Research Labs (TRL). 125 S 31st Street. Philadelphia, PA 19104.
Million Dollar Bike Ride 2014 - Million Dollar Bike Ride | Penn Medicine Orphan Disease Center
http://www.milliondollarbikeride.org/mdbr2014
8212; Main Menu —. Million Dollar Bike Ride 2014. The first annual Million Dollar Bike Ride took place on May 3rd, 2014. We thank all Million Dollar Bike Ride participants and sponsors for making the first annual Million Dollar Bike Ride such a big success! We had over 540 registered cyclists and raised over $1.4 million for rare disease research. Million Dollar Bike Ride 2014 professional photos can be accessed here. To see participant photos from the event. To see the 2014 MDBR disease teams. Pilot stu...
Photos - Million Dollar Bike Ride | Penn Medicine Orphan Disease Center
http://www.milliondollarbikeride.org/photos
8212; Main Menu —. Million Dollar Bike Ride 2015. Million Dollar Bike Ride 2014. Suite 2000 Translational Research Labs (TRL). 125 S 31st Street. Philadelphia, PA 19104.
2015 Disease Teams Archives - Million Dollar Bike Ride | Penn Medicine Orphan Disease Center
http://www.milliondollarbikeride.org/t/diseaseteams2015
8212; Main Menu —. Pitt Hopkins Giving Page. Bronchiolitis Obliterans Giving Page. Raring to Go for CHI. Castleman Disease Collaborative Network Castleman Disease Giving Page. Emily's Entourage Giving Page. Spin Factor for Hemophilia. Niemann Pick Type C. Team Josh & the DCO Riders. Dyskeratosis Congenita Team Josh and DCO Riders Giving Page. The Easy Breathers Giving Page. Bike To End Duchenne. Bike to End Duchenne Giving Page. Team MPS Giving Page. The Stop ALD Foundation. Stop ALD Penn Giving Page.
2014 Sponsors - Million Dollar Bike Ride | Penn Medicine Orphan Disease Center
http://www.milliondollarbikeride.org/sponsors
8212; Main Menu —. Thank you to all our sponsors for supporting Million Dollar Bike 2014! Million Dollar Bike 2014 Sponsors:. Suite 2000 Translational Research Labs (TRL). 125 S 31st Street. Philadelphia, PA 19104.
MDBR 2015 - Million Dollar Bike Ride | Penn Medicine Orphan Disease Center
http://www.milliondollarbikeride.org/mdbr-2015
8212; Main Menu —. Click the image below to see the awesome 2015 MDBR video! Click Image to see the 2015 MDBR video! 2015 MDBR Grant Awards. The 2nd Annual Million Dollar Bike Ride on Saturday, May 9, 2015 was a huge success. The Orphan Disease Center welcomed 600 cyclists and volunteers, more than a dozen neighborhood restaurants, and several supporting sponsors and community partners. Twenty three disease teams from 29 states (plus Canada, UK, Chile and the Netherlands! Florian Eichler, MD. Epithelial-...
Event Information - Movin' for Mallory
http://www.movinformallory.org/spinathon-information.html
2017 Happy Hour Event. November 25, 10am - November 26, 10am (that's right! 24 hours of spin! 15 Polly Drummond Shopping Center. Newark, DE 17111. We'll have the trainers, you bring the bike. If you don't have one, you can hop on one of ours! Spin for an hour. or two. or three. or. What's this all about? Join members of Henry’s Race Team, Team Rare Disease Cycling. This event is open to the public (all you have to do is pedal! What is a Spinathon? What is a spinathon? A spinathon is a fundraising event t...
Churtle: August 2011
http://churtle.blogspot.com/2011_08_01_archive.html
Wednesday, August 24, 2011. I went into the Fools race feeling rested, hydrated and determined. Determined to put in a strong race start to finish. Determined to let it hurt, welcome the hurt, laugh at the hurt. My determination paid off with a win and a new inspiration to be proud and grateful that I have the talent, ability, and willpower to ride strong. Subscribe to: Posts (Atom). View my complete profile.
Team CF becomes Rare Disease Cycling | Cyclingnews.com
http://www.cyclingnews.com/news/team-cf-becomes-rare-disease-cycling
December 20, 2013 8:18pm. December 20, 2013 8:19pm. Share on Google Plus. Team CF becomes Rare Disease Cycling. Squad broadens its reach. National Ultra Endurance (NUE) Series). Christian Tanguy (Team CF) on the start line. Sara Kristen Photography / sarakristen.smugmug.com). Wilson proud of Team CF's accomplishments. Team CF rolls into its fourth year. To date the members of Team Rare Disease Cycling have been a dominant force in East Coast racing in the United States, particularly on the endurance scen...
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Rare Disease Blogs | International opinion on Rare Diseases & Orphan Drugs
International opinion on Rare Diseases and Orphan Drugs. Six key messages from Rare Disease Day 2014 toward better care. March 3, 2014. We are breaking the isolation and despair of children and adults amongst the most vulnerable citizens in our society today. Join Together for Better Care. Is the precise and strong common message launched by patient groups and stakeholders from 83 countries and regions on Rare Disease Day 2014. From Rare Disease Day 2014,. Embedded in the Rare Diseases International.
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Welcome to the Pfizer Rare Diseases Consortium | rarediseaseconsortiumprod
Skip directly to content. Welcome to the Pfizer Rare Diseases Consortium. Welcome to the Pfizer Rare Diseases Consortium, a ground-breaking interaction initially established between Pfizer and our founding collaborators the GMEC. Consortium of six major UK universities. The Pfizer RDC, which was established to accelerate the pace of innovation in delivering medicines for rare diseases, is now expanding beyond GMEC. To engage with additional UK and European academic institutions. Cookie and Privacy Policy.
Cycling to find a cure for rare diseases - Rare Disease Cycling
Million Dollar Bike Ride. Million Dollar Bike Ride. August 16, 2015. August 22, 2015. September 6, 2015. September 20, 2015. AEC v1.0.4. Tanguy takes NUE Series lead w/2nd Place Finish @ Wilderness 101 goo.gl/G1MhqZ. About 2 weeks ago. From Rare Disease Cycling's Twitter. Via Twitter Web Client. Yeager takes the win at Michaux. Harding/Thiemann go 2-3 at Granogue. ow.ly/PXozN. About 3 weeks ago. From Rare Disease Cycling's Twitter. Via Twitter for iPhone. About 2 months ago. Via Twitter for iPhone. Rare ...
国际罕见病日
国际罕见病日 Rare Disease Day. 由罕见病发展中心 CORD 主办的主题为 改变从了解开始 2015国际罕见病日 中国 宣传月启动仪式在北京凯德晶品购物中心隆重举行。 活动地图 Mapping Our Actions.
Rare Disease Day レアディジーズデイ 世界希少・難治性疾患の日
Rare Disease Day 開催に向けたご挨拶ならびにご寄付 バッジメンバー のお願い. 本サイトは Creative Commons 3.0の下にリリースされている GLYPHICON.
Rare Disease Day ® 2015
Rare Disease Day 2015, February 28. What is Rare Disease Day? About our official partners. What is a Rare Disease? Living with a rare disease is the theme for 2015. The Official Video for Rare Disease Day 2015. Highlights from past Rare Disease Days. Show your organisation’s support! Raise and Join Hands! Show your solidarity with people living with a rare disease! Share a video or photo of your experience living with a rare disease. Register your event details. Join us on our Social Media! PRIMERAS JORN...
Rare Disease Day - Home
Explore the Rare Disease Day website. How to get involved. New Zealand Rare Disease Day. And help raise awareness and funds for support groups and research throughout the country. People with rare diseases in New Zealand are few and far between, so we like to think of them as. By working together, we know we have a greater chance of our. Being seen and heard. LAM Trust Movie Event. Bridgeway Theatre, North Shore. Rare Disease Dress Up Day. Bayfield Early Education Centre. Katie’s brother, Caleb, and sist...
Международный день редких болезней
Международный день редких болезней. До дня редких болезней осталось. Открытое заседание общественных организаций по защите прав пациентов при Министерстве здравоохранения Российской Федерации, посвященное Международному Дню редких заболеваний. 25 февраля, Москва. О дне редких заболеваний. Представителей Законодательного собрания России, Минздрава России, Департамента здравоохранения г. Москвы, Минздрава Московской области, общественныых деятелей. Разработка сайта: DriveLab.ru.
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