rarediseaseday.org.nz

Rare Disease Day - Home

Explore the Rare Disease Day website. How to get involved. New Zealand Rare Disease Day. And help raise awareness and funds for support groups and research throughout the country. People with rare diseases in New Zealand are few and far between, so we like to think of them as. By working together, we know we have a greater chance of our. Being seen and heard. LAM Trust Movie Event. Bridgeway Theatre, North Shore. Rare Disease Dress Up Day. Bayfield Early Education Centre. Katie’s brother, Caleb, and sist...

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Explore the Rare Disease Day website. How to get involved. New Zealand Rare Disease Day. And help raise awareness and funds for support groups and research throughout the country. People with rare diseases in New Zealand are few and far between, so we like to think of them as. By working together, we know we have a greater chance of our. Being seen and heard. LAM Trust Movie Event. Bridgeway Theatre, North Shore. Rare Disease Dress Up Day. Bayfield Early Education Centre. Katie’s brother, Caleb, and sist...

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Rare Disease Day - Home | rarediseaseday.org.nz Reviews

https://rarediseaseday.org.nz

Explore the Rare Disease Day website. How to get involved. New Zealand Rare Disease Day. And help raise awareness and funds for support groups and research throughout the country. People with rare diseases in New Zealand are few and far between, so we like to think of them as. By working together, we know we have a greater chance of our. Being seen and heard. LAM Trust Movie Event. Bridgeway Theatre, North Shore. Rare Disease Dress Up Day. Bayfield Early Education Centre. Katie’s brother, Caleb, and sist...

INTERNAL PAGES

rarediseaseday.org.nz

1

Rare Disease Day - Home

http://www.rarediseaseday.org.nz/home

Explore the Rare Disease Day website. How to get involved. And help raise awareness and funds for support groups and research throughout the country. People with rare diseases in New Zealand are few and far between, so we like to think of them as. By working together, we know we have a greater chance of our. Being seen and heard. Tuberous Sclerosis Complex NZ Picnics. Mission Bay Playground, Auckland; Hamilton Lake Playground; Christchurch Botanic Gardens Playground. View the auction list. A movie evenin...

2

Rare Disease Day - About the day

http://www.rarediseaseday.org.nz/about_the_day

Explore the Rare Disease Day website. How to get involved. Rare Disease Day takes place on the last day of February around the world and is an annual celebration and fundraiser for those Rare Gems in our community. Here in New Zealand we are lucky to be the first to kick off the celebrations worldwide. For details of events that you can contribute to. Or you can organise you own event. And don’t forget to share your event. Find out how other countries are celebrating their Rare Gems:. Rare Disease Day USA.

3

Rare Disease Day - How to get involved

http://www.rarediseaseday.org.nz/how_to_get_involved

Explore the Rare Disease Day website. How to get involved. How to get involved. A day to celebrate. Rare Disease Day is our chance to raise funds for the dedicated support groups who usually go unnoticed in our communities. By working together to raise awareness, we know we have a better chance of people hearing and seeing our Rare Gems. The objectives for Rare Disease Day are to:. Raise funds for your favourite rare disease support group. Have some fun while you do it! Decide what you want to do. Downlo...

4

Rare Disease Day - How to get involved

http://www.rarediseaseday.org.nz/donate

Explore the Rare Disease Day website. How to get involved. How to get involved. A day to celebrate. Rare Disease Day is our chance to raise funds for the dedicated support groups who usually go unnoticed in our communities. By working together to raise awareness, we know we have a better chance of people hearing and seeing our Rare Gems. The objectives for Rare Disease Day are to:. Raise funds for your favourite rare disease support group. Have some fun while you do it! Decide what you want to do. Downlo...

5

Rare Disease Day - Resources

http://www.rarediseaseday.org.nz/downloads

Explore the Rare Disease Day website. How to get involved. The Rare Disease Day 2016 poster can be downloaded below. We have also produced a version of the poster that has space for you to add details of your Rare Disease Day event. You can also download material from the international Rare Disease Day website. To help you spread the word. If you would like to order some pins, please email Lyndal at RDD@nzord.org.nz.

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nzordgroups.org.nz

NZORD (old) - NZORD Newsletter 2015 #2 – 10 April 2015

http://www.nzordgroups.org.nz/news_and_issues/newsletters/2015/nzord-newsletter-2015-2-10-april-2015

Skip to Primary Navigation. Skip to Main Content. Skip to Utility Menu. Explore the NZORD Site. Health Care and Support. Press releases and submissions. Press releases and submissions. Find us on Facebook. Subscribe to press releases and newsletters. Follow us on YouTube. NZORD accepts donations through Givealittle. New Zealand Organisation for Rare Disorders. PO Box 38-538,. 64 4 471 2226. Charities Commission Registration CC22512. NZORD Newsletter 2015 #2 10 April 2015. Official figures released this w...

nzordgroups.org.nz

NZORD (old) - News & Issues

http://www.nzordgroups.org.nz/news_and_issues

Skip to Primary Navigation. Skip to Main Content. Skip to Utility Menu. Explore the NZORD Site. Health Care and Support. Press releases and submissions. Press releases and submissions. Find us on Facebook. Subscribe to press releases and newsletters. Follow us on YouTube. NZORD accepts donations through Givealittle. New Zealand Organisation for Rare Disorders. PO Box 38-538,. 64 4 471 2226. Charities Commission Registration CC22512. Press Releases and Submissions. Copies of our e-mail newsletter.

nzordgroups.org.nz

NZORD (old) - Welcome

http://www.nzordgroups.org.nz/home

Skip to Primary Navigation. Skip to Main Content. Skip to Utility Menu. Explore the NZORD Site. Health Care and Support. Find us on Facebook. Subscribe to press releases and newsletters. Follow us on YouTube. NZORD accepts donations through Givealittle. New Zealand Organisation for Rare Disorders. PO Box 38-538,. 64 4 471 2226. Charities Commission Registration CC22512. NZORD, the New Zealand Organisation for Rare Disorders, provides New Zealands central starting point for information about rare diseases.

nzordgroups.org.nz

NZORD (old) - Health Care & Support

http://www.nzordgroups.org.nz/health_care_and_support

Skip to Primary Navigation. Skip to Main Content. Skip to Utility Menu. Explore the NZORD Site. Health Care and Support. Living with your condition. Living and participating in your community. Living with your condition. Living and participating in your community. Find us on Facebook. Subscribe to press releases and newsletters. Follow us on YouTube. NZORD accepts donations through Givealittle. New Zealand Organisation for Rare Disorders. PO Box 38-538,. 64 4 471 2226. Health Care and Support.

angelmannetwork.wordpress.com

Rare Disease Day Gatherings | The Angelman Network

https://angelmannetwork.wordpress.com/news-nz/rare-disease-day-gatherings

Angelman Syndrome New Zealand. 0 – 6 YEARS. 6 – 18 YEARS: & EDUCATION. 18 years – Adult. 2014 Event Calendar (global). In the NZ Media. Rare Disease Day Gatherings. International Angelman Day NZ ’14. International Angelman Day NZ ’13. Inaugural International Angelman Day around the world. Articles on AS Research. Angelman Syndrome Foundation (ASF). Blogs: Families & Individuals. Rare Disease Day Gatherings. The Angelman Network and Rare Disease Day gatherings. 2009: First Auckland gathering. In New Zeala...

nzord.org.nz

NZORD - Home

http://www.nzord.org.nz/home

Skip to Primary Navigation. Skip to Secondary Navigation. Skip to Main Content. Skip to Utility Menu. Find a support group. Explore the NZORD site. How we can help. Living with a rare disease. What is a rare disease? Other New Zealanders’ stories. Stories from around the world. Press releases and submissions. Send us your story. NZORD, the New Zealand Organisation for Rare Disorders, provides New Zealand's central starting point for information about rare diseases. Folic acid update report released.

nzord.org.nz

NZORD - Stories from around the world

http://www.nzord.org.nz/introduction/stories_from_around_the_world

Skip to Primary Navigation. Skip to Secondary Navigation. Skip to Main Content. Skip to Utility Menu. Find a support group. Explore the NZORD site. How we can help. Living with a rare disease. What is a rare disease? Other New Zealanders’ stories. Stories from around the world. Press releases and submissions. Send us your story. Living with a rare disease. What is a rare disease? Other New Zealanders’ stories. Stories from around the world. Stories from around the world. Also, for Rare Disease Day.

nzordgroups.org.nz

NZORD (old) - Meeting room for hire in Wellington

http://www.nzordgroups.org.nz/news_and_issues/press_releases_and_submissions/meeting_room_for_hire_in_central_wellington

Skip to Primary Navigation. Skip to Main Content. Skip to Utility Menu. Explore the NZORD Site. Health Care and Support. Press releases and submissions. Press releases and submissions. Find us on Facebook. Subscribe to press releases and newsletters. Follow us on YouTube. NZORD accepts donations through Givealittle. New Zealand Organisation for Rare Disorders. PO Box 38-538,. 64 4 471 2226. Charities Commission Registration CC22512. Meeting room for hire in Wellington. Explore the Site using our Sitemap.

nzordgroups.org.nz

NZORD (old) - Rare Disease Information

http://www.nzordgroups.org.nz/rare_disease_information

Skip to Primary Navigation. Skip to Main Content. Skip to Utility Menu. Explore the NZORD Site. Health Care and Support. About Genes, DNA, Cells and Genetic Inheritance. About Genes, DNA, Cells and Genetic Inheritance. Find us on Facebook. Subscribe to press releases and newsletters. Follow us on YouTube. NZORD accepts donations through Givealittle. New Zealand Organisation for Rare Disorders. PO Box 38-538,. 64 4 471 2226. Charities Commission Registration CC22512. These databases contain large quantiti...

nzordgroups.org.nz

NZORD (old) - Other New Zealanders' Stories

http://www.nzordgroups.org.nz/introduction/other_new_zealanders_stories

Skip to Primary Navigation. Skip to Main Content. Skip to Utility Menu. Explore the NZORD Site. Health Care and Support. A Definition of Rare Disorders. Other New Zealanders' Stories. Stories from around the world. A Definition of Rare Disorders. Other New Zealanders' Stories. Siblings defy the odds to graduate. Saving Lisa - One woman's fight against LAM. One Family's Journey with Mucolipidosis type 3. Family funds research into lost girls. Dave Hill’s experience with Superficial Siderosis. 64 4 471 2226.

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Welcome to the Pfizer Rare Diseases Consortium | rarediseaseconsortiumprod

Skip directly to content. Welcome to the Pfizer Rare Diseases Consortium. Welcome to the Pfizer Rare Diseases Consortium, a ground-breaking interaction initially established between Pfizer and our founding collaborators the GMEC. Consortium of six major UK universities. The Pfizer RDC, which was established to accelerate the pace of innovation in delivering medicines for rare diseases, is now expanding beyond GMEC. To engage with additional UK and European academic institutions. Cookie and Privacy Policy.

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Cycling to find a cure for rare diseases - Rare Disease Cycling

Million Dollar Bike Ride. Million Dollar Bike Ride. August 16, 2015. August 22, 2015. September 6, 2015. September 20, 2015. AEC v1.0.4. Tanguy takes NUE Series lead w/2nd Place Finish @ Wilderness 101 goo.gl/G1MhqZ. About 2 weeks ago. From Rare Disease Cycling's Twitter. Via Twitter Web Client. Yeager takes the win at Michaux. Harding/Thiemann go 2-3 at Granogue. ow.ly/PXozN. About 3 weeks ago. From Rare Disease Cycling's Twitter. Via Twitter for iPhone. About 2 months ago. Via Twitter for iPhone. Rare ...

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国际罕见病日 Rare Disease Day. 由罕见病发展中心 CORD 主办的主题为改变从了解开始 2015国际罕见病日中国宣传月启动仪式在北京凯德晶品购物中心隆重举行。活动地图 Mapping Our Actions.

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Rare Disease Day 開催に向けたご挨拶ならびにご寄付バッジメンバーのお願い. 本サイトは Creative Commons 3.0の下にリリースされている GLYPHICON.

rarediseaseday.org

Rare Disease Day ® 2015

Rare Disease Day 2015, February 28. What is Rare Disease Day? About our official partners. What is a Rare Disease? Living with a rare disease is the theme for 2015. The Official Video for Rare Disease Day 2015. Highlights from past Rare Disease Days. Show your organisation’s support! Raise and Join Hands! Show your solidarity with people living with a rare disease! Share a video or photo of your experience living with a rare disease. Register your event details. Join us on our Social Media! PRIMERAS JORN...

rarediseaseday.org.nz

Rare Disease Day - Home

Explore the Rare Disease Day website. How to get involved. New Zealand Rare Disease Day. And help raise awareness and funds for support groups and research throughout the country. People with rare diseases in New Zealand are few and far between, so we like to think of them as. By working together, we know we have a greater chance of our. Being seen and heard. LAM Trust Movie Event. Bridgeway Theatre, North Shore. Rare Disease Dress Up Day. Bayfield Early Education Centre. Katie’s brother, Caleb, and sist...

rarediseaseday.ru

Международный день редких болезней

Международный день редких болезней. До дня редких болезней осталось. Открытое заседание общественных организаций по защите прав пациентов при Министерстве здравоохранения Российской Федерации, посвященное Международному Дню редких заболеваний. 25 февраля, Москва. О дне редких заболеваний. Представителей Законодательного собрания России, Минздрава России, Департамента здравоохранения г. Москвы, Минздрава Московской области, общественныых деятелей. Разработка сайта: DriveLab.ru.

rarediseaseday.us

Rare Disease Day USA | Alone we are Rare. Together we are Strong.

OFFICIAL U.S. SPONSOR. February 29, 2016. About Rare Disease Day. 2015 Recap & Press Coverage. Goals and Plans for 2015. Successes from Past Years. History of Rare Disease Day. What is a State House Event? Press Kit and Resources. Partners & Supporters. Handprints Across America 2015. Handprints Across America 2014. Handprints Across America 2013. Countdown to Rare Disease Day! Tell your story or follow ours in our active online community. What's Happening in Your State? From State House events.

rarediseaseday2012fr.weebly.com

Rare Disease Day_FR - Home

Rare Disease Day FR. A propos de RaDiOrg.be. Témoignages de patients atteints de maladies rares et de leurs proches. Avec l'aimable autorisation de la Fondation Roi Baudouin). Pour soumettre vos témoignages, utilisez le formulaire en bas de page. Soumettez vos témoignages. Create a free website. Start your own free website. A surprisingly easy drag and drop site creator. Learn more.

rarediseaseday2012nl.weebly.com

Rare Disease Day_NL - Home

Rare Disease Day NL. Getuigenissen van patiënten en hun familie (met dank aan de Koning Boudewijnstichting). Deel uw getuigenis met het formulier onderaan deze pagina. Create a free website. Start your own free website. A surprisingly easy drag and drop site creator. Learn more.

rarediseasedayaustralia.com.au

Rare Disease Day Australia

Rare Disease Day Australia. ABOUT RARE DISEASE DAY. WHAT IS A RARE DISEASE? GET INVOLVED ON THE DAY. Thank you to all supporters for raising and joining hands for Rare Disease Day 2015! Rare Disease Day, celebrated each year on 28 February (a rare day), raises awareness about rare diseases and the impacts they have on those affected personally and their families. The 2015 Rare Disease Day theme is Day-by-day, hand-in-hand . Support the campaign by liking the Facebook page. And sharing your stories. A swo...