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Rare Disease Day USA | Alone we are Rare. Together we are Strong.

OFFICIAL U.S. SPONSOR. February 29, 2016. About Rare Disease Day. 2015 Recap & Press Coverage. Goals and Plans for 2015. Successes from Past Years. History of Rare Disease Day. What is a State House Event? Press Kit and Resources. Partners & Supporters. Handprints Across America 2015. Handprints Across America 2014. Handprints Across America 2013. Countdown to Rare Disease Day! Tell your story or follow ours in our active online community. What's Happening in Your State? From State House events.

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Rare Disease Day USA | Alone we are Rare. Together we are Strong. | rarediseaseday.us Reviews

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OFFICIAL U.S. SPONSOR. February 29, 2016. About Rare Disease Day. 2015 Recap & Press Coverage. Goals and Plans for 2015. Successes from Past Years. History of Rare Disease Day. What is a State House Event? Press Kit and Resources. Partners & Supporters. Handprints Across America 2015. Handprints Across America 2014. Handprints Across America 2013. Countdown to Rare Disease Day! Tell your story or follow ours in our active online community. What's Happening in Your State? From State House events.

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2 events schedule

3 list your event

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6 handprints across america

7 suggested activities

8 in school activities

9 partners

10 supporters

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Rare Disease Day USA | Alone we are Rare. Together we are Strong. | rarediseaseday.us Reviews

https://rarediseaseday.us

OFFICIAL U.S. SPONSOR. February 29, 2016. About Rare Disease Day. 2015 Recap & Press Coverage. Goals and Plans for 2015. Successes from Past Years. History of Rare Disease Day. What is a State House Event? Press Kit and Resources. Partners & Supporters. Handprints Across America 2015. Handprints Across America 2014. Handprints Across America 2013. Countdown to Rare Disease Day! Tell your story or follow ours in our active online community. What's Happening in Your State? From State House events.

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rarediseaseday.us

1

Events | Rare Disease Day USA

http://rarediseaseday.us/events/events

Rare Disease Day USA. Tell Us What You’re Doing. History of the Day. What Is A Rare Disease? Rare Disease Day USA. How are you spending Rare Disease Day? List your event by filling out this form. We will post it here. Share on social media. And add to the global calendar. Find out where the events are near you. About the importance of State House Events. Share photos on social media with #RareDiseaseDay. The official worldwide hashtag. Tell Us What You’re Doing. History of the Day.

2

Tell Us What You're Doing | Rare Disease Day USA

http://rarediseaseday.us/events/tell-us-what-youre-doing

Rare Disease Day USA. Tell Us What You’re Doing. History of the Day. What Is A Rare Disease? Rare Disease Day USA. Tell Us What You’re Doing. Tell Us What You’re Doing. This year, let’s #CoverTheMap. And show the reach of Rare Disease Day with all of the events being planned across the U.S. We need your help! To cover the map, submit your event using the form below. Spread the word with #CoverTheMap. And through social media. Description of the Event *. Event Contact Person *. State / Province / Region.

3

About Rare Disease Day® | Rare Disease Day USA

http://rarediseaseday.us/about

Rare Disease Day USA. Tell Us What You’re Doing. History of the Day. What Is A Rare Disease? Rare Disease Day USA. About Rare Disease Day. About Rare Disease Day. Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. It’s never too early to get involved! To receive news updates and to start planning your event for 2017! Many eve...

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History of the Day | Rare Disease Day USA

http://rarediseaseday.us/about/history

Rare Disease Day USA. Tell Us What You’re Doing. History of the Day. What Is A Rare Disease? Rare Disease Day USA. About Rare Disease Day. History of the Day. History of the Day. Introduced it in the U.S. in 2009, Rare Disease Day. Has grown each year, thanks to the participation and support of our partners, ambassadors and supporters. Here is a brief summary of highlights from each year:. Rare Disease Day US 2016. Together, we planned and hosted 37. Advocates in all 50. More than 2,100. RareDiseaseDay: ...

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Thank You for Raising Your Hand! | Rare Disease Day USA

http://rarediseaseday.us/raise-your-hand

Rare Disease Day USA. Tell Us What You’re Doing. History of the Day. What Is A Rare Disease? Rare Disease Day USA. Thank You for Raising Your Hand! Thank You for Raising Your Hand! Help Spread the Word. Click on any of the share buttons on the left of the page, or copy and paste the code onto your blog or website, to share this cause with your friends and family. Together, we can make a difference. Alone we are Rare. Together we are Strong. Copy and paste this snippet of code onto your site or blog:.

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Pterygium Syndrome, Multiple - NORD (National Organization for Rare Disorders)

http://rarediseases.org/rare-disease-information/rare-diseases/byID/963/viewAbstract

Information & Resources. Resources & FAQs. State Health Insurance Information. Information for Your Doctor. News About Patient Recruitment. Help to Access Medications. Find a Patient Organization. Find a Patient Meeting. Start a Patient Organization. Other Ways to Partner. About the Corporate Council. Council Code of Conduct. Education & Research Programs. Natural Histories Patient Registry. Resources for Medical Professionals. Resources for your Patients. Join the Rare Action Network. Characteristic fac...

glgpharma.com

The GLG Pharma STAT Blog

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GLG Pharma STAT Blog. Cancer Treatment and Prevention. News and Press Releases. The GLG Pharma STAT Blog. GLG Pharma Announces Presentation at Upcoming AACR, the Annual Cancer Research Meeting 2015 April 18-22, 2015. Richard Gabriel on Mon, Mar 23, 2015 @ 03:30 PM. Jupiter, FL - March 23, 2015. GLG Pharma, LLC, focused on developing drugs to prevent/treat cancer as well as other diseases mediated by dysfunctional STAT3 signaling, announced a NCI data presentation at the. Robert H. Shoemaker. Has been rep...

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GLG Pharma at Rare Disease Day Tallahassee Florida!

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GLG Pharma STAT Blog. Cancer Treatment and Prevention. News and Press Releases. The GLG Pharma STAT Blog. GLG Pharma at Rare Disease Day Tallahassee Florida! Richard Gabriel on Wed, Feb 18, 2015 @ 04:47 PM. GLG Pharma is participating along with Rare Disease Advocates Commemorate Worldwide Awareness Day at the Florida State House. Issues of importance to the rare disease community that may be decided at the state level including newborn screening, support services for families coping with complex medical...

bos-foundation.org

Bohring-Opitz Syndrome Foundation, Inc. Strategic Alliance Partnerships

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Research and Medical Care. Orlando, FL 32856. The Best Life for All Families Living with BOS. Research and Medical Care. Here is a list of our current partners:. This is example content. Double-click here and select a page to feature its content. Learn more. Jun 11, 2012. Jun 11, 2012. Jun 11, 2012. Jun 11, 2012. Jun 11, 2012. Jun 11, 2012. Find the BOS Foundation on The Mighty.

rarediseases.org

Batten Disease - NORD (National Organization for Rare Disorders)

http://rarediseases.org/rare-disease-information/rare-diseases/byID/259/viewFullReport

Information & Resources. Resources & FAQs. State Health Insurance Information. Information for Your Doctor. News About Patient Recruitment. Help to Access Medications. Find a Patient Organization. Find a Patient Meeting. Start a Patient Organization. Other Ways to Partner. About the Corporate Council. Council Code of Conduct. Education & Research Programs. Natural Histories Patient Registry. Resources for Medical Professionals. Resources for your Patients. Join the Rare Action Network. For years, the ter...

lipodystrophyunited.org

News

http://www.lipodystrophyunited.org/news.html

June 25, 2015. What's New With LU? LU President, Andra Stratton, at a meeting with European Endocrinologists in Barcelona, Spain. Andra Stratton, President and Co-Founder of Lipodystrophy United, asks an important question at the Global Genes RARE Patient Advocacy Summit to Dr. Gayatri Tao, Director, Office of Orphan Products Development, Food and Drug Administration (FDA). Global Genes Video. September 25th and 26th, 2015. Global Genes RARE Patient Advocacy Summit 2015. March 31, 2015. February 28, 2015.

rarediseases.org

Angioimmunoblastic T-Cell Lymphoma - NORD (National Organization for Rare Disorders)

http://rarediseases.org/rare-disease-information/rare-diseases/byID/439/viewAbstract

Information & Resources. Resources & FAQs. State Health Insurance Information. Information for Your Doctor. News About Patient Recruitment. Help to Access Medications. Find a Patient Organization. Find a Patient Meeting. Start a Patient Organization. Other Ways to Partner. About the Corporate Council. Council Code of Conduct. Education & Research Programs. Natural Histories Patient Registry. Resources for Medical Professionals. Resources for your Patients. Join the Rare Action Network. The specific sympt...

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Rare Disease Day ® 2015

Rare Disease Day 2015, February 28. What is Rare Disease Day? About our official partners. What is a Rare Disease? Living with a rare disease is the theme for 2015. The Official Video for Rare Disease Day 2015. Highlights from past Rare Disease Days. Show your organisation’s support! Raise and Join Hands! Show your solidarity with people living with a rare disease! Share a video or photo of your experience living with a rare disease. Register your event details. Join us on our Social Media! PRIMERAS JORN...

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Rare Disease Day - Home

Explore the Rare Disease Day website. How to get involved. New Zealand Rare Disease Day. And help raise awareness and funds for support groups and research throughout the country. People with rare diseases in New Zealand are few and far between, so we like to think of them as. By working together, we know we have a greater chance of our. Being seen and heard. LAM Trust Movie Event. Bridgeway Theatre, North Shore. Rare Disease Dress Up Day. Bayfield Early Education Centre. Katie’s brother, Caleb, and sist...

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Международный день редких болезней. До дня редких болезней осталось. Открытое заседание общественных организаций по защите прав пациентов при Министерстве здравоохранения Российской Федерации, посвященное Международному Дню редких заболеваний. 25 февраля, Москва. О дне редких заболеваний. Представителей Законодательного собрания России, Минздрава России, Департамента здравоохранения г. Москвы, Минздрава Московской области, общественныых деятелей. Разработка сайта: DriveLab.ru.

rarediseaseday.us

Rare Disease Day USA | Alone we are Rare. Together we are Strong.

OFFICIAL U.S. SPONSOR. February 29, 2016. About Rare Disease Day. 2015 Recap & Press Coverage. Goals and Plans for 2015. Successes from Past Years. History of Rare Disease Day. What is a State House Event? Press Kit and Resources. Partners & Supporters. Handprints Across America 2015. Handprints Across America 2014. Handprints Across America 2013. Countdown to Rare Disease Day! Tell your story or follow ours in our active online community. What's Happening in Your State? From State House events.

rarediseaseday2012fr.weebly.com

Rare Disease Day_FR - Home

Rare Disease Day FR. A propos de RaDiOrg.be. Témoignages de patients atteints de maladies rares et de leurs proches. Avec l'aimable autorisation de la Fondation Roi Baudouin). Pour soumettre vos témoignages, utilisez le formulaire en bas de page. Soumettez vos témoignages. Create a free website. Start your own free website. A surprisingly easy drag and drop site creator. Learn more.

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Rare Disease Day_NL - Home

Rare Disease Day NL. Getuigenissen van patiënten en hun familie (met dank aan de Koning Boudewijnstichting). Deel uw getuigenis met het formulier onderaan deze pagina. Create a free website. Start your own free website. A surprisingly easy drag and drop site creator. Learn more.

rarediseasedayaustralia.com.au

Rare Disease Day Australia

Rare Disease Day Australia. ABOUT RARE DISEASE DAY. WHAT IS A RARE DISEASE? GET INVOLVED ON THE DAY. Thank you to all supporters for raising and joining hands for Rare Disease Day 2015! Rare Disease Day, celebrated each year on 28 February (a rare day), raises awareness about rare diseases and the impacts they have on those affected personally and their families. The 2015 Rare Disease Day theme is Day-by-day, hand-in-hand . Support the campaign by liking the Facebook page. And sharing your stories. A swo...

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