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Advice on Rare Diseases from About.com
Why Is Getting A Rare Disease Diagnosis So Difficult? An Overview of Spina Bifida. Common Emotions When Diagnosed With a Rare Disease. Sign Up for our Free Newsletters. Thanks, You're in! Health Tip of the Day. You might also enjoy:. There was an error. Please try again. Please select a newsletter. Please enter a valid email address. Why Join A Rare Disease Support Group? All About Rare Diseases. Basics of Human Genetics. Understanding Cancers of the Blood Cells. Is it a Rare Disease? Rare Diseases A - Z.
Rare Diseases - Ben's Friends Online Support Group
Ben's Friends Flyer. First Time User Guide. 1 Become a Member. 2 Make Friends. 3 Post to a Forum. 4 Read or write a Blog. 5 Join or Create a Group. Read More from our First-Time-User Guide. ARE YOU IN CRISIS? First take a deep breath, then call the National Suicide Prevention Hotline immediately. 1-800-273-TALK. For members in the United States, or for international members, please visit http:/ www.suicide.org/international-suicide-hotlines.html. 160;for the right phone numbers for your region.
Vzácná onemocnění
IPF: Když je dřina i samotné dýchání. Základní informace o Rettově syndromu. Hemofilie, nemoc nejen králů. Více článků. Dědičné metabolické poruchy a život s nimi. Onemocnění spinální muskulární atrofie (SMA). Šest pacientů s deficitem kyselé lipázy není v ČR konečné číslo. Hypofosfatázie poněkud opomíjené onemocnění. Komplex tuberózní sklerózy a současná špičková medicína. Více článků. Paroxysmalní noční hemoglobinurie praktické zkušenosti s léčbou. Dobří andělé pomáhají i dětem se vzácným onemocněním.
Welcome to the IMB | IMB - The Institute for Molecular Bioscience
Skip to main content. The University of Queensland. Institute fo Molecular Bioscience. Centre for Rare Diseases Research. Find out how you can support the Centre for Rare Diseases Research. Read more. Read more about Support our research. Meet the people behind the Centre for Rare Diseases Research. Read more. Read more about Meet our researchers. Discover how you can expand your study horizons with CRDR. Read more about Study with us. Learn about the research projects within the CRDR. Read more.
Office of Rare Diseases Research (ORDR-NCATS) | Supports rare disease research and information
US Department of Health and Human Services. National Institutes of Health. Recursos en español. Genetic and Rare Diseases Information Center (GARD). Tips for the Undiagnosed. Enfermedades en español. Search for Genetic and Rare Diseases. Enfermedades en español. Browse Diseases with FDA Approved Medical Products. Genetic Testing and Treatment. Support for Patients and Families. Recursos en Español. Medical and Science Glossaries. How to Find a Disease Specialist. Get Involved in Research. NIH funds 22 co...
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Home - NORD (National Organization for Rare Disorders)
Information & Resources. Resources & FAQs. State Health Insurance Information. Information for Your Doctor. News About Patient Recruitment. Undiagnosed Rare Disease Patients. Help to Access Medications. Find a Patient Organization. Find a Patient Meeting. Start a Patient Organization. Other Ways to Partner. About the Corporate Council. Council Code of Conduct. Education & Research Programs. Natural Histories Patient Registry. Resources for Medical Professionals. Resources for your Patients. Search NORD’s...
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RAREDISEASES.RU - информационный портал по редким заболеваниям,"лекарствам - сиротам" и редко применяемым медицинским технологиям. Site translation (перевод сайта ). Powered by Google Translate. Кодекс поведения (HONcode) для медицинских WEB-сайтов. WEB-сайт разделяет Кодекс поведения (HONcode) для медицинских WEB-сайтов The Health on the Net Foundation и планирует проведение аккредитации и получение HONcode сертификата. Обмен информацией и взаимодействие между пациентами, их родственниками, медицинскими...
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