rarediseases.bensfriends.org
Rare Diseases - Ben's Friends Online Support GroupBen's Friends Patient Communities - support group for patients affected by rare diseases
http://rarediseases.bensfriends.org/
Ben's Friends Patient Communities - support group for patients affected by rare diseases
http://rarediseases.bensfriends.org/
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Rare Diseases - Ben's Friends Online Support Group | rarediseases.bensfriends.org Reviews
https://rarediseases.bensfriends.org
Ben's Friends Patient Communities - support group for patients affected by rare diseases
rarediseases.bensfriends.org
BaltimoreBaby's Page - Rare Diseases - Ben's Friends Online Support Group
http://rarediseases.bensfriends.org/profile/BaltimoreBaby
Ben's Friends Flyer. First Time User Guide. 0 members like this. BaltimoreBaby has not received any gifts yet. May 24, 2015. May 21, 2015. May 18, 2015. May 18, 2015. Welcome BB, glad to see you here! May 18, 2015. Is now a member of Rare Diseases - Ben's Friends Online Support Group. May 18, 2015. Please share your story with the community. How did you hear about us? This information tells us how to best find new patients to help! Why did you decide to join (multiple answers okay)? Or sign in with:.
lori landi's Page - Rare Diseases - Ben's Friends Online Support Group
http://rarediseases.bensfriends.org/profile/lorilandi
Ben's Friends Flyer. First Time User Guide. Seneca Falls, NY. 0 members like this. Lori landi has not received any gifts yet. Lori landi's Page. Group Reflex Sympathetic Dystrophy. Sep 30, 2013. Group Reflex Sympathetic Dystrophy. Crystal Shards mother's tear's on the ground crystal shards, power found Rubie's deep in the skinshowing paths that need to mend Emerald fire shinning bright Illuminates star's at night Sapphires, with color's". Sep 23, 2012. Thanks so much , Scott! Apr 14, 2011. Apr 14, 2011.
Sign Up for Rare Diseases - Ben's Friends Online Support Group - Rare Diseases - Ben's Friends Online Support Group
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Apply for membership now. If you're already a member, sign in. Sign Up for Rare Diseases - Ben's Friends Online Support Group. Create a new account. There was a problem signing up. I still can't sign up. Cookies may not be enabled in your browser. You will need to enable them in order to continue. We won't display your age without asking. Close. What color is snow? Create a new account. About Rare Diseases - Ben's Friends Online Support Group.
Cardplayer's Page - Rare Diseases - Ben's Friends Online Support Group
http://rarediseases.bensfriends.org/profile/Cardplayer
Ben's Friends Flyer. First Time User Guide. 0 members like this. Cardplayer has not received any gifts yet. Jun 28, 2015. Welcome, Careplayer, to this supportive community. Here is your group: http:/ rarediseases.bensfriends.org/group/gastroparesis. May 16, 2015. Is now a member of Rare Diseases - Ben's Friends Online Support Group. May 16, 2015. What rare disease(s) are you dealing with or survived? Gastroparesis, undifferentiated connective tissue disease, avascular necrosis (AVN). You need to be a mem...
doggie's Page - Rare Diseases - Ben's Friends Online Support Group
http://rarediseases.bensfriends.org/profile/doggie
Ben's Friends Flyer. First Time User Guide. 0 members like this. Doggie has not received any gifts yet. Hello and welcome, doggie.". Jul 4, 2015. Is now a member of Rare Diseases - Ben's Friends Online Support Group. Jul 4, 2015. What rare disease(s) are you dealing with or survived? Please share your story with the community. How did you hear about us? This information tells us how to best find new patients to help! Why did you decide to join (multiple answers okay)? What are you passionate about? Von W...
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Patient Resources | Genetic Disease Foundation
http://www.geneticdiseasefoundation.org/patient-resources
Medical and Scientific Advisory Board. One Test, Many Answers. When you or a loved one is faced with a genetic disease it can be confusing and overwhelming. Getting the right information you need is vital. At the GDF, we believe in hope through knowledge. Here, you can find information on genetic diseases, links to online resources, and specific answers to questions and help in locating physicians, genetic counselors who can provide immediate assistance. Center for Jewish Genetic Diseases. Developed by ...
My Normal | storytelling for rare disease health: Resources
http://www.mynormal.ca/p/links.html
My Normal storytelling for rare disease health. Using Personal Stories for Advocacy. IDEAS: Storytelling and Health. We've also started a listly of stories. That makes it easy to find online stories and add your own to the growing list. Rare Disease Story Galleries. The galleries below are great story sources and may also be places where YOU can contribute your story:. Acid Maltase Deficiency Association (AMDA), Meet the Patients. Acromegaly.care, Patient and Caregiver Stories. FMD Chat, Patients' Stories.
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Rare Disease Review
Is a medical & health policy journal focused on providing detailed discourse on rare diseases and their societal effects that anyone can understand. Looking Beyond the Gluten-Free Diet. Canada’s Mining History: Mesothelioma. The Right to Try. Immunotherapy and The Autoimmune. Recent Updates in Anti-NMDA Receptor Encephalitis Research. A Battle Against the Clock. Marijuana Reform: At Long Last. Bill S-201: The Beginning of the End to Genetic Discrimination in Canada. Living Life as a Tree.
rarediseases-ru.livejournal.com
РЕДКИЕ (ОРФАННЫЕ) ЗАБОЛЕВАНИЯ | RARE DISEASES
Upgrade to paid account! МРБООИ СОЮЗ ПАЦИЕНТОВ И ПАЦИЕНТСКИХ ОРГАНИЗАЦИЙ ПО РЕДКИМ ЗАБОЛЕВАНИЯМ. РЕДКИЕ (ОРФАННЫЕ) ЗАБОЛЕВАНИЯ RARE DISEASES. August 7th, 2014. Почему российские власти отказываются закупать лекарства для людей с уникальными заболеваниями? Этим летом ГД отклонила проект федерального закона о лечении пациентов с орфанными болезнями за счет федерального бюджета. Подробнее: http:/ spiporz.ru/posts/1027871. August 6th, 2014. Срок за лекарство: очередной людоедский закон. August 6th, 2014.
Advice on Rare Diseases from About.com
Why Is Getting A Rare Disease Diagnosis So Difficult? An Overview of Spina Bifida. Common Emotions When Diagnosed With a Rare Disease. Sign Up for our Free Newsletters. Thanks, You're in! Health Tip of the Day. You might also enjoy:. There was an error. Please try again. Please select a newsletter. Please enter a valid email address. Why Join A Rare Disease Support Group? All About Rare Diseases. Basics of Human Genetics. Understanding Cancers of the Blood Cells. Is it a Rare Disease? Rare Diseases A - Z.
Rare Diseases - Ben's Friends Online Support Group
Ben's Friends Flyer. First Time User Guide. 1 Become a Member. 2 Make Friends. 3 Post to a Forum. 4 Read or write a Blog. 5 Join or Create a Group. Read More from our First-Time-User Guide. ARE YOU IN CRISIS? First take a deep breath, then call the National Suicide Prevention Hotline immediately. 1-800-273-TALK. For members in the United States, or for international members, please visit http:/ www.suicide.org/international-suicide-hotlines.html. 160;for the right phone numbers for your region.
Vzácná onemocnění
IPF: Když je dřina i samotné dýchání. Základní informace o Rettově syndromu. Hemofilie, nemoc nejen králů. Více článků. Dědičné metabolické poruchy a život s nimi. Onemocnění spinální muskulární atrofie (SMA). Šest pacientů s deficitem kyselé lipázy není v ČR konečné číslo. Hypofosfatázie poněkud opomíjené onemocnění. Komplex tuberózní sklerózy a současná špičková medicína. Více článků. Paroxysmalní noční hemoglobinurie praktické zkušenosti s léčbou. Dobří andělé pomáhají i dětem se vzácným onemocněním.
Welcome to the IMB | IMB - The Institute for Molecular Bioscience
Skip to main content. The University of Queensland. Institute fo Molecular Bioscience. Centre for Rare Diseases Research. Find out how you can support the Centre for Rare Diseases Research. Read more. Read more about Support our research. Meet the people behind the Centre for Rare Diseases Research. Read more. Read more about Meet our researchers. Discover how you can expand your study horizons with CRDR. Read more about Study with us. Learn about the research projects within the CRDR. Read more.
Office of Rare Diseases Research (ORDR-NCATS) | Supports rare disease research and information
US Department of Health and Human Services. National Institutes of Health. Recursos en español. Genetic and Rare Diseases Information Center (GARD). Tips for the Undiagnosed. Enfermedades en español. Search for Genetic and Rare Diseases. Enfermedades en español. Browse Diseases with FDA Approved Medical Products. Genetic Testing and Treatment. Support for Patients and Families. Recursos en Español. Medical and Science Glossaries. How to Find a Disease Specialist. Get Involved in Research. NIH funds 22 co...
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