rarediseasereview.org

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rarediseasereview.org

Rare Disease Review

Is a medical & health policy journal focused on providing detailed discourse on rare diseases and their societal effects that anyone can understand. Looking Beyond the Gluten-Free Diet. Canada’s Mining History: Mesothelioma. The Right to Try. Immunotherapy and The Autoimmune. Recent Updates in Anti-NMDA Receptor Encephalitis Research. A Battle Against the Clock. Marijuana Reform: At Long Last. Bill S-201: The Beginning of the End to Genetic Discrimination in Canada. Living Life as a Tree.

rarediseases-ru.livejournal.com

РЕДКИЕ (ОРФАННЫЕ) ЗАБОЛЕВАНИЯ | RARE DISEASES

Upgrade to paid account! МРБООИ СОЮЗ ПАЦИЕНТОВ И ПАЦИЕНТСКИХ ОРГАНИЗАЦИЙ ПО РЕДКИМ ЗАБОЛЕВАНИЯМ. РЕДКИЕ (ОРФАННЫЕ) ЗАБОЛЕВАНИЯ RARE DISEASES. August 7th, 2014. Почему российские власти отказываются закупать лекарства для людей с уникальными заболеваниями? Этим летом ГД отклонила проект федерального закона о лечении пациентов с орфанными болезнями за счет федерального бюджета. Подробнее: http:/ spiporz.ru/posts/1027871. August 6th, 2014. Срок за лекарство: очередной людоедский закон. August 6th, 2014.

rarediseases.about.com

Advice on Rare Diseases from About.com

Why Is Getting A Rare Disease Diagnosis So Difficult? An Overview of Spina Bifida. Common Emotions When Diagnosed With a Rare Disease. Sign Up for our Free Newsletters. Thanks, You're in! Health Tip of the Day. You might also enjoy:. There was an error. Please try again. Please select a newsletter. Please enter a valid email address. Why Join A Rare Disease Support Group? All About Rare Diseases. Basics of Human Genetics. Understanding Cancers of the Blood Cells. Is it a Rare Disease? Rare Diseases A - Z.

rarediseases.bensfriends.org

Rare Diseases - Ben's Friends Online Support Group

Ben's Friends Flyer. First Time User Guide. 1 Become a Member. 2 Make  Friends. 3 Post to a  Forum. 4 Read or write a  Blog. 5 Join or Create a  Group. Read More from our  First-Time-User Guide. ARE YOU IN CRISIS? First take a deep breath, then call the National Suicide Prevention Hotline immediately. 1-800-273-TALK. For members in the United States, or for international members, please visit http:/ www.suicide.org/international-suicide-hotlines.html. 160;for the right phone numbers for your region.

rarediseases.co.za

Rare Diseases South Africa

Rare Diseases South Africa.

rarediseases.cz

Vzácná onemocnění

IPF: Když je dřina i samotné dýchání. Základní informace o Rettově syndromu. Hemofilie, nemoc nejen králů. Více článků. Dědičné metabolické poruchy a život s nimi. Onemocnění spinální muskulární atrofie (SMA). Šest pacientů s deficitem kyselé lipázy není v ČR konečné číslo. Hypofosfatázie poněkud opomíjené onemocnění. Komplex tuberózní sklerózy a současná špičková medicína. Více článků. Paroxysmalní noční hemoglobinurie praktické zkušenosti s léčbou. Dobří andělé pomáhají i dětem se vzácným onemocněním.